Hello... i'm new here as you may have guessed lol, but I am also shy which i have a good problem sharing problems with othersso I thought i would start here. My seizures started at the age of 15 and after that first one we all just thought I had just passed out from lack of sleep and too much exercise but after the second one we figured it out. We weren't sure about the first one but I did get pretty banged up, blood every where. Looked like someone had beat the crap out of me in the school bathroom but no one did. Then from there over a couple years we tried medicine and changing the amount i took every time and we found the right amount that worked(for a year at least) but then i had one and couldnt drive for a while, and we up the amount a had to take. Over all the years i felt like a test subject like they were experimenting on me. No one else in my family has seizure(in the household) so they don't actually know how it feels, it feels pretty lonely that no one has any idea of what you're going through. But now i have a significant other that i can really talk to although she doesn't have seizures, but no matter what, she is always there and doesn't care how tough it is. But we had finally found the right dose to take and i had been great for two years and driving, it felt great until about a week or two ago.... I had another one while i was driving, it almost feels like i have no freedom anymore. One of my arteries are fractured so i have to take it easy for a month which means no more fun out door activities for a while. My car is also totaled so it will be a looooong time before i can drive again(no one else was hurt). I have that one special pperson that makes me forget it all while i'm with her but when it comes to mind, i feel lost when she isn't around... she was there every day in the hospital(which i was there for a week) which was a half hour drive. It's hard for me to remember things, and names. I feel very awful when i have to ask the person their name two to maybe three time before i remember. Well i know i have written too much but i need to let more things out and hopefully you guys understand this too.
New here =/
- Thread starter Rantheral
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Welcome to the Coping With Epilepsy Forums
Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.
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Hi Rantheral, welcome to CWE!
This is a great place -- we know how you feel and can empathize with what you're going through. It sucks to have a seizure out of nowhere after a couple of years of control. Do you have any idea what brought it on? Sometimes there's atrigger or two that pushes you over the tipping point. Or you just forget your meds...
Anyway, I hope you an explore all the forums here, and feel free to post and ask questions.
Best,
Nakamova
This is a great place -- we know how you feel and can empathize with what you're going through. It sucks to have a seizure out of nowhere after a couple of years of control. Do you have any idea what brought it on? Sometimes there's atrigger or two that pushes you over the tipping point. Or you just forget your meds...
Anyway, I hope you an explore all the forums here, and feel free to post and ask questions.
Best,
Nakamova
epileric
Veteran
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Welcome Rantheral
Sounds like you're having a hard time with it. I've had seizures all my life but they never stopped long enough for me to ever drive. I sort of gave up on that for now. Don't feel lost just because you can't drive. I walk or take the bus everywhere & when I lived in the country I would hitch-hike if I had to (the country was safer back then). Besides, I'm in better shape from all that walking.
I know how you feel not being able to remember peoples names. It used to bother me but now I just tell people not to be offended. I even told one person that if they want I can give them as many excuses for a bad memory as they want to hear. Personally I think the worse I feel the worse other people feel so I just try not to let it bother me.
Anyway, make yourself at home and check out what we got.
Sounds like you're having a hard time with it. I've had seizures all my life but they never stopped long enough for me to ever drive. I sort of gave up on that for now. Don't feel lost just because you can't drive. I walk or take the bus everywhere & when I lived in the country I would hitch-hike if I had to (the country was safer back then). Besides, I'm in better shape from all that walking.
I know how you feel not being able to remember peoples names. It used to bother me but now I just tell people not to be offended. I even told one person that if they want I can give them as many excuses for a bad memory as they want to hear. Personally I think the worse I feel the worse other people feel so I just try not to let it bother me.
Anyway, make yourself at home and check out what we got.
Ann T.
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Greetings, Rantheral! 
You have discovered THE MOST wonderful group of people to become acquainted with! And, I'm glad to hear you have a significant other who supports you through all the ins & outs, thicks & thins of life. Epilepsy itself is a complex condition because it's so restrictive (no driving, no swimming, only take showers, etc., etc...), but we at CWE use our creativity to find solutions around these restrictions. While people who do not understand epilepsy choose to judge us, we at CWE are free spirits. So, please visit us often, because we have much information to offer in a judgement-free environment. Take care, Rantheral, and may you heal quickly.
You have discovered THE MOST wonderful group of people to become acquainted with! And, I'm glad to hear you have a significant other who supports you through all the ins & outs, thicks & thins of life. Epilepsy itself is a complex condition because it's so restrictive (no driving, no swimming, only take showers, etc., etc...), but we at CWE use our creativity to find solutions around these restrictions. While people who do not understand epilepsy choose to judge us, we at CWE are free spirits. So, please visit us often, because we have much information to offer in a judgement-free environment. Take care, Rantheral, and may you heal quickly.
neilB
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:cheers:Hi Rantheral,
I can relate, especially about the names. I forget names and sometimes call people the wrong names (which is REAL fun at work!). I'm glad you found us and feel free to vent all you'd like (we've all done it too). Hang in there!
I can relate, especially about the names. I forget names and sometimes call people the wrong names (which is REAL fun at work!). I'm glad you found us and feel free to vent all you'd like (we've all done it too). Hang in there!