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Chelle

Chelle

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Hi! I am so excited to have found this forum. This week I was re diagnosed with Partial Seizures in the Left Temporal Lobe. My journey started out at the age of four when I had my first seizure. At that time I was diagnosed with focal seizures and took tegretol for several years. When I was about eleven my mom noticed I stop having the "fainting" or "passing out" and the doctors took me off my medicine. Through out this time I have learn that my seizures didn't go away only changed to staring spells and odd feeling in my head. I thought and was told by some that I was just a careless person, unorganized do to my memory, too emotional and moody, made careless mistakes, and a "witch" because I couldn't control my temper. Now at the age of 27 I have learned that my seizures effect my memory, mood, spelling and speech. My doctor has said that with the right medicine I will feel awesome once my epilepsy is under control. But the effects of those years when I wasnt on any treatment make me feel that people including family members and ex-employers were cruel because I truly couldn't control these symptoms.I have epilepsy but I don't have an obvious disease so people just think I am a difficult person. I am relieved to know my diagnosis but angered at the way I have been treated in the past. Does anybody share a similar experience?
 
Hi Chelle.

No one was ever cruel to me, but I lost jobs due to my seizures. My bosses thought I was just inattentive and dazed out. Probably thought I was on drugs. They effected me during school as well. This all lasted until I got things under control, of course.
Seizures had a similar effect on me.

Well, Chelle, welcome to CWE.
 
My exboss actually accused me of trying to sabotage her business by miss filing customer records. I definitely can relate.
 
Welcome!

Welcome Chelle :)

I am (relatively) new here as well. I found myself here after looking for advice on trying to figure out "what it meant" to have Simple and Complex Seizures.

I am still in the process of being diagnosed, but I relate to how people perceive you all to well! Especially what you said here...

Chelle said:
I thought and was told by some that I was just a careless person, unorganized do to my memory, too emotional and moody, made careless mistakes, and a "witch" because I couldn't control my temper.
Click to expand...

I am very glad you have found more answers once again, because when you are dealing with Partial seizures it is anything but just "careless" and "emotional".

Gretel
 
Welcome Chelle!!!!

Not the easiest place to be in and so many times we are pushed to the point that we have to explain Epilepsy to others in detail. Even then you can never be sure that it really sinks in all the way.
The worst it ever was for me at work was finding out that there was a nickname attached to me behind my back. It took me a few weeks of hoping it would go away before confronting it. The name was 'twitchy' so obviously good times there.
 
hello chelle,
my memory was terible due to seizures and a med I was on for a long time. The seizures depressed me really bad also.
 
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