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Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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jasmom

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I am the mother of 2 beautiful children, one healthy beautiful daughter and one handsome son who has epilepsy.

Ten Years ago I watched in horror as my son slumped to the floor, his face frozen in a twisted grimace, his body twitching in convulsions.

My son has Temporo-occipital seizures which became generalized seizures and absence seizures.

He is now 16 and we still have control over his seizures, yet they seem to have changed quite a bit. It will be 2 years March 8, that he hasn't had a grand-mal. But lately they seem to be coming in clusters and complex partial as well as partial. He is on Epival, dilantin and lamictal (Epival and lamictal were recently increased). Have another blood test and eeg in begining of march and pat with his neuro on the 18th of march, which at this time will be deterimed if a change of meds or something else, which will not be surgery, his neuro says he is not considering him for surgery, at this point. Well thats it, sorry for blabbing
 
Welcome Jasmom -

So sorry to hear about your son's seizures coming back. I hope that they can figure this out for you as soon as possible. I will keep you in my prayers.
 
Hi Jasmom, welcome to the forum. :hello:

Make yourself at home here. :)
 
Hi jasmom -- Welcome here and wishing you the best
 
Welcome JasMom
Glad that you joined us. I too have a 16 yr old. She has been having seizures for the last 1.5 yrs. We have an appt in the morning with the EEG Institute to learn more about Neurofeedback. I am open to all alternative therapies. Meds did not work for us.
 
Welcome jasmom

I think you'll like it here. Lots of parents in of kids with E and TONS of information. And a character or two to make you smile!
 
:hello: Jasmom!

Welcome to CWE!
Kick back and browse around!
And sorry to hear that your son's
going through more seizures!
:(

But glad you've stopped by
here! Hope you find lots of
resources and support here!
:)
 
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