New Here

[davido mcspeedo]

Hi I am new to this too. I have replied already but not introduced myself. My names Helen and my son has juvenile myoclonic epilepsy. He's now 25 and was diagnosed at 15 yrs old. Apparently he also had veniegn occipital epilepsy as a child. We know nothing off this! He has outgrown that but unfortunately will be on meds for rest of his life. I wish there had been a site like this when I was struggling for information and support. It is wonderful. I still worry but my son is amazing. At present in Australis for the second time. Seizures well controlled. Just passed his driving test, first time and has never let epilepsy get him down. Complains occasionally as he thinks his weight problem ( not too bad) is due to the meds. I felt desperate when he was diagnosed but you do learn to cope. I hope you do to.

 

[epileric]

Welcome

So glad you found this site Helen. I've found it to be a great place with very understanding people.

Hope you don't mind but I felt you deserved your own thread for everyone to introduce themselves to you. (I'm Eric :hello

I get the impression you'd already started to check out the site but if you have any questions feel free to ask, everyone here is pretty supportive. We've even got a padded room if you need to let out some of the stresses that accompany having a child with epilepsy. I was born with it but I sometimes wonder if it stressed my parents more than it stressed me.

Eric

 

[Bens mom]

Welcome Davido, Hi Eric, I'm newish

I'm glad your son is well controlled and is out in the big wide world:clap:, I have yet to meet anyone who doesn't complain about their weight.

As a parent we all have to learn when our kids want us to make a fuss and when they don't it can be a very fine line.

Ben is disabled he has deteriated over the years and is now totaly reliant, so I am a very fussy mom. His grandparents could not cope at all so we don't see them anymore. It would be a very boring world if we were all the same.

Keep Happy

 

[BuckeyeFan]

:cheers:

Welcome to our house. The door is always open. Have a comfy seat and a cup of coffee.

:cheers:

 

[skillefer]

Hi Helen! Welcome to CWE.

 

[seizures4ever]

Hi Helen and Welcome!

We're glad to have you join us. Feel free to drop in anytime to vent, support, laugh, and learn.

This is a great place with a bunch of really caring people.:agree:

-Julie :e:

 

[joan]

Hi Helen and welcome* Good to hear about your son as both my kids JME. You will enjoy it here.

joan*

 

[brain]

:hello: Helen!

Welcome to CWE and glad you have found
us and make yourself a home! Feel free to
browse around and post whatever you need
to! We all hurt when those who are hurting;
and we laugh when we're in a silly mood ...

We're a big family here... and there's plenty
of room for more!

:tup:

 

[Bernard]

Hi Helen, belated welcome to the forum. :hello:

Glad to hear that your son is well controlled. :mrt: