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Welcome to the Coping With Epilepsy Forums

Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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jen z

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Hello. I'm Jen. I'm 21 years old. I've had seizures since I was 3 and was diagnosed with epilepsy when I was 10. My seizures seem to have steadily gotten worse over the years even though I have been assured many times by several different doctors that the seizures would lessen with time.

I'm not real sure what else to say... I'm new to all of this!
 
:hi5:Hello and Welcome to the Forum!:hello:

I hope you enjoy it as much as I do. You will meet alot of wonderful people that will understand your situation. So if you have any questions just ask and someone usually has a answer for you. Nice to meet you. Take care and I hope to talk to you more again. :brock:
 
HI Jen - my daughter started having seizures two years ago in June. I think hers got worse with the medicines we tried.

Now we are doing neurofeedback, and I do believe we have found an answer. I am still knocking on wood every time I say that, but my intuition tells me so.

She also has a very strict nutritional plan that we do our best to have her follow. I think every thing is working in her favor.

I am glad that you joined us. It will get easier for you with each post. I am testament to that.
 
Hi Jen, welcome to the forum. :hello:

Sometimes, it helps to get proactive. There is a ton of info in these forums. Have a look around and make yourself at home here. :)
 
:hello: Jen!

Welcome to CWE and make yourself a home and
feel free to browse around! Glad to have you here!
 
Hi Jen -

So glad you are here. In all the years that I have been dealing with Epilepsy with my daughter and granddaughter, I have never heard a doctor (and we've been through a lot of doctors) assure us that the seizures would lessen in time. We were told that they could possibly outgrow them. My daughter's seizure's worsened during her teen years and also as an adult. Now, I have realized that we had put too much trust in her doctor and believed everything he said. I have a friend that has the same doctor that was my daughter's last doctor and she is very frustrated with him. Needless to say, because of her insurance, this is the only doctor they will cover. I have been trying to work with her to get referred to another doctor, but it is so hard to get the insurance companies to understand.
 
Hello, new to forum

Hi Sharon,
How are you doing? How is your weekend so far? I'm also here to this site. How is everyone here? I hope I'll enjoy this site. I have had epilepsy since I was about two years old. I'm also learning to deal with other health problems.
 
hawke86 said:
Hi Sharon,
How are you doing? How is your weekend so far? I'm also here to this site. How is everyone here? I hope I'll enjoy this site. I have had epilepsy since I was about two years old. I'm also learning to deal with other health problems.
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See your PM!

One of these days I'll find out who you are!

:pfft:

:touche:
 
Hi jen z what kind of seizures do you have and what meds are you on. Maybe your meds need changing as different meds cause different siezure patterns. I was on dillantin for 8 years with no seizures but it made my gums bleed and rotted 2 of my teeth. I am now on keppra which I don't like but thats another story. But now I don't go out to it with seizures they are partial the eyes will start seeing things abnormal specially at that time of the month i see colours. It only lasts a minute or so. But since increasing the dosage to stop the seizures with the eyes my hair is now coming out a bit and the neurologist is trying to say its not the meds but I have read on here that a couple of people have had the same thing happen to them after increasing the dosage of keppra. Anyway welcome and I hope that you can find a med suited to you. Can they operate? They say with me that they cannot because it is located right near where the sight nerve is in the brain. Regards grace. Have a nice day.
 
Hi jen! Welcome to CWE... :) This is a really friendly group. So feel free to ask any questions. :)
 
i have had pretty much every kind of seizure... but i mostly have clonic tonic seizures. i just started taking lamictal. but before that i was on depakote from age 9 until i was 20.
 
jen z said:
i have had pretty much every kind of seizure... but i mostly have clonic tonic seizures. i just started taking lamictal. but before that i was on depakote from age 9 until i was 20.
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I've been on Lamictal for over 10 years. I've had excellent seizure control with a combo of that and Mysoline. I know both are associated with osteoporosis, so I've been taking one of those calcium supplements on the side (chocolate chewy ones).
 
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