new - my lil' world feels as if its been turned on its head..

[flutter]

Hello
i'm new here and new to all of this, i dont even have a diagnosis yet as waiting on neurologist appt...just waiting. and waiting for next time i find myself on the floor surrounded by people.
I'm finding this really so hard to deal with, im not sure why. I suppose im a very independent person and it makes me feel i shouldn't venture out alone...or with others as its unfair to them so then i just feel i should stay locked away alone. My seizures have been very public and people and friends are avoiding me i can tell, it really hurts. i was very positive and fine for several weeks but its becoming too much, tiredness, dizziness, weakness, waiting for the next seizure, i find myself constantly thinking about the things which i cant do - which weirdly tend to be things i didnt have any desire to, eg. driving (only have prov license). i want answers. Is it likely that ill get a definitive yes/no from the neurologist? If they think it isn't epilepsy, what am i supposed to do then?? Im not sure if that scares me more, because how can you treat something if you dont know what it is?
i also suffer from depression and am having a hard time with it all. feel so very useless.

 

[BoudicaWV]

Flutter

Don't let this tear u apart, I did for so long and now i'm fighting again. Feels great; I've lost alot of friends too including my own mother she tells me it's just too much for her. I said what about me? She explained it was too much for her and now I have a husband n a family 5 girls, they can take the burden so loosing friends yes I understand and family. Try to keep positive thoughts, I know its a heck of alot easier said than done but when u feel down come to this site everyone will give u sound advice and great words of wisdom. Blow off some steam write in a journal or on the computer on how u feel each day you wouldn't believe how theraputic it's become for me well going to wrap it up. POSITIVE THOUGHTS ARE THE KEY, I LEARNED THAT HERE. Just keep logging in and talking to people you wouldn't believe how much of a burden has been lifted off of me because this site. They are a godsend. If you need anything just email me, my computer stays on 24/7 you never know when you'll need to blow off some steam. Boy does it really help. I hope your neurologist appt goes good. God bless and I'll be thinking of you today and always. I lost my license years ago and to be honest I don't really ever expect on getting them back, I know its hard at first but you'll adjust over time, alot easier said than done. See I drove until I had a seizure and had my at that time only 3 girls in the car hit a telephone pole and everyone had to be cut out, that was a real eye opener don't let this happen to u because i've never really forgiven myself fully and I don't think I ever will.
Sincerely,
Kimberly Wessells-Overstreet

 

[flitting]

fun times, innit?

I'm glad you're on route to a neuro appt....I've been dealing with this crap since May 2007 and couldn't get my doctor to care.

Now have appointment with a specialist that is, supposedly, competent and thorough, even.... am counting the days to April 8.

Definitely don't want to be driving... I (stupidly, I know) continued until the day that I had an episode while at the wheel.... could have easily killed myself or someone else.

I was extremely lucky ... only wrecked the car and my laptop... and both wrists.... it could have been SO much worse.

 

[skillefer]

Hi Flutter! Welcome to CWE. First of all, epilepsy isn't a death sentence. You'll find that many of us here went through the same feelings you are. Whether we went through it as a teen or adult, that feeling of being alone is the same. If it IS epilepsy, the doc will try to figure out what kind and what meds to put you on. The meds don't always work, and sometimes it takes a while for them to kick in. Also, the most typical side effect is feeling really sleepy until your body gets used to the meds. Now, meds are not the only treatment option available. There's also diet, supplements, and EEG neurofeedback. You might want to look into these. Now...as I said, if you choose meds, it may take a while to work. It's not like you just take a magic pill and it all disappears. You'll still need to make sure that you get at least 7 hours of sleep each night, deal with stress in a healthy manner, eat a healthy diet, and get some exercise. It sucks when friends pull away, but often they do when they are afraid or unsure. Sometimes they come back on their own, when they have finally wrapped their brains around the situation. Others come back after they see you doing ok on meds. And still others don't come back. That third group wasn't really friends to begin with. When you get more comfortable with your condition, so will they. Now, as for what you can do. Get educated about your condition. And realize that it's alot like asthma or diabetes...for most of us, its treatable. If you think of it that way, it's less scary. Then, learn as much as you can and learn how to help people with seizures. Then, as your friends come back, pass that info along. Most of the time, people are scared because they feel helpless when we seize. If you tell them how to help you, they can take a proactive approach.

 

[hawke86]

I have seizures, epilepsy(seizures), asthma and diabetes. My life is always a challenge.

 

[carlasmoore]

I can beat your challenges! I have epilepsy, depression, endometriosis, hypothyroidism and I'm overly healthy! I feel like I'm a pharmacy.