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Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.

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alison458

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Hi my name is Alison and i am a 36 year old who has a mother that suffers from seizures. I thought that this board would be a great way for me to get info, support,etc.
 
hi Alison! Welcome to CWE. :) Feel free to ask questions, chime in, or just vent when needed. :)
 
Welcome to CWE

I hope we can help you understand things better. I"m always impressed when friends & family want to join so they can better support someone with seizures so have a cup of coffee on the house :cheers:, make yourself at home & check out all the nooks & crannies we have here.
 
Welcome...this place is a Godsend. It's nice to see friends/family members on here, glad to know others have family members who actually want to learn. :clap:
My family prefers that I don't talk about seizures in front of them!
 
Yes, my parents used to tell us when we were young that my mother just had the Hiccupps. To this day i hate getting the hiccupps. She dosent like talking about it and she had a really bad one last year while she was driving. The scary thing is she just left my house as she was babysitting for me. I am not sure why she stops taking her meds but she does. Luckily we live on a deserted road and no-one was hurt but the neighbors had to break her car window and call 911. It was very scary for her and for me. My parents dont like to admit or acknowledge that anything is wrong. Since her last seizure (that i know of) she seems a bit "slow" almost like she has early onset Altezimers (sp). I asked the Dr. in the ER after they did a Cat Scan if he saw anything and he said no. My question is how much damage if any can a seizure have on the brain?
 
welcome

Just wanted to say welcome and I know you'll find some much needed answers to questions you may have.
 
Maybe she should see a new doctor, having a doctor that you are comfortable with goes a long way in going along with treatment and sticking to it.
I started having seizures in Jan 2008 and got diagnosed in April 2008. I am on Keppra and it took a few months to get meds on right level. Also I got a lot of emotional support here and have learned some much from others here.
I do get the sensation that I lose a little something that I never get back after each seizure. I don't know if medically how much or how little damage it does, but it does effect me emotionally with each seizure.
Good news, last complex partial was August 25!
 
Hello Allison,
welcome to the board.
I've had epilepsy since I was 2 and know how frustrating it can be.
I've taken plenty of meds in my time and had brain surgery surger
People here are great.
Belinda
 
Hi Allison :hello: Welcome to CWE! It's great that you are so supportive of your mother and are wanting to learn more. You've come to an excellent place for information and encouragement. I'm glad you joined us :)
 
Hi Allison - I am here to help my daughter who has a seizure disorder. She is 17 and we are controlling it with nutritional changes, vitamin and mineral supplementing for brain and body health, and neurofeedback. It has been an exciting transformation since she has been off of the medication. However it takes a lot of discipline, and research to get to the point we are today.
 
alison458 said:
Hi my name is Alison and i am a 36 year old who has a mother that suffers from seizures. I thought that this board would be a great way for me to get info, support,etc.
Click to expand...

Hello alison im Joey and yes this would be a great place for you to find advice and good friends!
 
Hello Alison, welcome on CWE, a real nice place to learn more about epilepsy. I'm here because I have a 9-year old special needs son who has a real bad epilepsy syndrome. He can't tell me what it's like to have seizures, so I do learn a lot from the people here.
 
Hi Alison and welcome! Glad you found our site. :agree:

There are plenty of informative places and people at CWE.

We're a lively, friendly bunch :hello:

-Julie
 
Hi alison458, welcome to the forum. :hello:

Being "slow" after a seizure is pretty common. It takes a while to recover from severe seizure activity. Mental fog can also be a side effect of many AEDs, so if they pumped her full of drugs at a hospital, that could be a contributing factor.
 
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