New to CWE

[susan c]

Hi, I'm Susan. I am new to this site. I have had epilepsy (combined with MS) for the past 30 years. I always wondered if my symptoms were related to MS?...no its Epilepsy. Are you sure? No, it must be MS. Are you sure? No, it could be epilepsy..... but I really thought everything was due to MS. My seizures were years apart, mostly. Now my MS is worsening and I know my depressed mood is a combination of both taking dilantin for epilepsy and the limitations imposed by MS. Today I take 300Mg of dilantin daily for my epilepsy and shoot myself with copaxone for MS under my arm, in my thigh, my stomach or my hip each night.
It's nice to have a place to say these words.

 

[julie wishes]

Hi Susan, I got your message on my board, but didn't know how to respond. I'm new here as well and don't know how to use all the attributes yet.

Welcome to CWE. I think you will find peace here. And lots of people who feel as you do

 

[epileric]

Welcome susan c

I've had seizures all my life but it was my dad who had the MS in the family.

I've never known anyone with MS that also had epilepsy but that is a really good question..... why would a deterioration of the myelin sheath not cause neurons to misfire?

Meanwhile, please make yourself at home and check the place out.

 

[Nakamova]

Hi susan c, welcome to CWE!

There does seem to be a link between MS and epilepsy, but it's not clear whether the connection is causal, correlative, or coinicidental:http://www.ncbi.nlm.nih.gov/pubmed/12609222
http://www.ncbi.nlm.nih.gov/pubmed/3780609

Have you talked to your doctor about your depression? If the Dilantin is at fault, there are other anti-seizure medications you might consider trying.

Best,
Nakamova

 

[rich956]

Hi, I'm Susan. I am new to this site.
It's nice to have a place to say these words.

Hey Susan & Greetings