new to epilepsy and this forum..at age 32
- Thread starter Jenka
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Thank you
thank you. i look at it this way--it cant be worse. that other dr was bothering me--too many unanswerd questions. im doing my own research . i see he makes a statement about the liver---there are so many enzymes there and only 3 were tested. 2 were slightly high. if 1 is high, a big blood workup should have been ordered for the big liver enzymes. it wasnt done. then he tells me i can take statins. that goes thru the liver and my research tells me never to take statins. if 1 enzyme is elevated.i stopped it on my own. its so hard to find a good dr today and this one im going to never told me to stop anything. he said liver, but he said to wait. nerves can rejuvenate on their own.he never told me to stop dilantin. i cant. no other drug agrees with me. so i stopped the statins. a month wont maker a difference. this dr doesnt have the best personality, but im only looking for competence. his personality doesnt matter. i just want this corrected.the other dr had me dead and buried and wouldnt even answer simple questions. thats not a dr to me.i was so nervous from him, but i really think this is the way to go.
thank you. i look at it this way--it cant be worse. that other dr was bothering me--too many unanswerd questions. im doing my own research . i see he makes a statement about the liver---there are so many enzymes there and only 3 were tested. 2 were slightly high. if 1 is high, a big blood workup should have been ordered for the big liver enzymes. it wasnt done. then he tells me i can take statins. that goes thru the liver and my research tells me never to take statins. if 1 enzyme is elevated.i stopped it on my own. its so hard to find a good dr today and this one im going to never told me to stop anything. he said liver, but he said to wait. nerves can rejuvenate on their own.he never told me to stop dilantin. i cant. no other drug agrees with me. so i stopped the statins. a month wont maker a difference. this dr doesnt have the best personality, but im only looking for competence. his personality doesnt matter. i just want this corrected.the other dr had me dead and buried and wouldnt even answer simple questions. thats not a dr to me.i was so nervous from him, but i really think this is the way to go.
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I agree! Doctors know what they know. I do feel even though I am not too knowledgeable about these seizures exactly, I do know my body and what and how I feel. Some things, even though the drs may think they know it all, really don't know much. The Keppra was ruining my life!!! I was on it for just less than a month and already wanted to die. I told him that right away, and he told me to stay on it and try. I was on it for 4 months!!! I swear those were the 4 most sad empty loneliest months of my life! I literally had to go to my dr on an off day, after having a breakdown at work and went in crying my eyes out wishing I was no longer alive! It really sucks that I had to go through that to get off the Keppra. Always do what feels right for YOUR BODY!! We know ourselves best and when something feels OFF , it is OFF!! 
im so sorry for what you went thru
i can really relate to your experience. i was ready to put my fist thru a wall or commit suicide too from keppra. i cant see a dr who gave me something like this. i dont care what his reputation is.my husband agrees. he really feels my instinct is riight. so do i. it makes me angry--how can a drug like this be approved by the FDA in the first place?i was writing a book about crime. i was an english teacher and i wanted all my life to write my novel. i did the research and i learned that every 9 seconds a major crime is committed. i wouldnt be surprised if drugs like this do it. they should be off the market. i had 2 hand surgeries and i couldnt finish my book, but i learned enough.drugs like this are so dangerous.now im going june 14 to the proper dr. he never wanted to do this.i also read that this drug can cause people to go literally insane. i was starting to feel it too. thank god youre ok. im ok. youre right--we know ourselves best of all.i was so scared. i never had feelings like this before. i want to live. i have so much to live for and then this drug----i follow my instincts from now on. you do that too.i know what i can handle. he says liver and doesnt even check all the liver enzymes. only 2 were slightly elevated. he made me think i was dying tomorrow. he tells me i can go on statins and that goes thru the liver. when i asked him WHY CAN THIS GO THRU AND NOT THAT he said I HAVE NO TIME. thats it. no more of him.the new dr hasnt the greatest personality, but thats not impt. he knows his business. he never wanted to change meds. he wanted to go slow. i feel better just knowing im going back to him.
i can really relate to your experience. i was ready to put my fist thru a wall or commit suicide too from keppra. i cant see a dr who gave me something like this. i dont care what his reputation is.my husband agrees. he really feels my instinct is riight. so do i. it makes me angry--how can a drug like this be approved by the FDA in the first place?i was writing a book about crime. i was an english teacher and i wanted all my life to write my novel. i did the research and i learned that every 9 seconds a major crime is committed. i wouldnt be surprised if drugs like this do it. they should be off the market. i had 2 hand surgeries and i couldnt finish my book, but i learned enough.drugs like this are so dangerous.now im going june 14 to the proper dr. he never wanted to do this.i also read that this drug can cause people to go literally insane. i was starting to feel it too. thank god youre ok. im ok. youre right--we know ourselves best of all.i was so scared. i never had feelings like this before. i want to live. i have so much to live for and then this drug----i follow my instincts from now on. you do that too.i know what i can handle. he says liver and doesnt even check all the liver enzymes. only 2 were slightly elevated. he made me think i was dying tomorrow. he tells me i can go on statins and that goes thru the liver. when i asked him WHY CAN THIS GO THRU AND NOT THAT he said I HAVE NO TIME. thats it. no more of him.the new dr hasnt the greatest personality, but thats not impt. he knows his business. he never wanted to change meds. he wanted to go slow. i feel better just knowing im going back to him.
kepra was no good for me it made me have more siezures ( it may help others though ) and also maybe thats why i felt so bad for quite a long time , i couldn`t tell when a siezure was coming i would just have one and feel queer after , i also lost most of my memory , i couldn`t remember if i had taken my tablet 5 min earlier , i was having up to 7 grand mal`s a day and 4 at night for several months .
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momof5kids
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Hey and welcome. I also take medication but didnt like the side effects but I got over them and now I take my meds like clock work everyday. And if I dont I feel really weird.
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the more im reading here and doing my own research i see how frightening a drug keppra is.how this is even approved. i never felt as bad as i did when i was on the keppra and it was only 4 days. i thought i was losing my mind. i was in a different world.im not too good with new drugs anyway. ive had bad side effects before from a pill that didnt agree with me, but in a few hrs i was fine. this put me in another world altogether. i was really scared.i never had feelings like this before. this is a dangerous drug. i read here how so many of you are having trouble with it too. i really wanted to commit suicide. i never felt that before. i couldnt imagine what was happening to me. now its out of my system and im on the dilantin and im ok. im just waiting to see the new dr june 14. i will never go back to someone like this who did this to me, knowing how hard i am with new drugs. 7 grand mal seizures in 1 day are dangerous.and then at nite too. im glad youre better now. the drug should be taken off the market. how its approved ill never know. im reading horror stories here. first i thought it was me because im hard on new drugs, but from what im reading here, i cant believe a dr would even prescribe it. i was even reading the brochure and how it said if you feerl suicidal, anxious, not yourself, wanting to hurt someone----i should have read the brochure before i started.i was so shaken up by my experience. the drug is out of me now, but im still scared when i look back.it took me awhile to come back to myself. my children were worried about this too. when they saw me---you can imagine their thoughts.i had to take a sedative to calm down--i only took a half of 1 mg . of xanax. im finally calming down and still doing my research. it makes me so frightened for others taking it too.