Hi,
My name is Wendy and this is all very new to me. I had my first seizure at the age of 39 and didn't have another for three years. The first happened after taking my son to his little league game. I got out of the car and went down. I hit my head hard on the concrete parking lot. I had a grand mal seizure. Tests were done and nothing was found. I was put on dilantin, but had horrible reactions to it. I went off the Dilantin and was not put on anything else. It was pretty much written off as a one time fluke.
3 years went by, no medication, no obvious seizures...first one gone from memory. The day of my second, i was at work, and thought I caught the light of the flourescent lights in my office the wrong way. My right eye started flickering. It wouldn't go away so I put on my sunglasses. This has happened to me a few times before when I spend alot of time on the computer, so I thought nothing of it. It finally went away and I finished the day of work and started home.
I remember most of the ride home. But, suddenly, I was in my bedroom with the police and paramedics around me. Apparently, I made it to my street, had a seizure and ended up in my neighbors yard where he found me and got my husband. I was completely incoherent and babbling nonsense. I didn't recognize my neighbor or my husband. My husband took me home, changed me (my bladder had completely emptied during the seizure) and called 911. I thought they were all crazy and had no idea what was going on until I was in the hospital.
I am still in the process of all the testing, so I don't really have any answers yet, except that my MRI looked normal, so, thank god, no brain masses. I'm back to work but finding it really difficult. i don't know if it's the medication (Keppra 1,500mg a day) but my emotions are all over the place and I feel almost bi-polar. I'm either racing all over the place or crying. My husband has been taking me to work and to all of my doctor's appointments. My work has been great because i'm the sick one, but it's starting to affect his job because he's gone so much taking me all over the place. Also he feels as if everything is laid on him. It's starting to put alot of strain on our relationship, which makes me hate myself and my situation even more.
The drivers license thing is the worst. I feel as if every bit of my independence is gone and that is something that I have always valued more than anything. I have two kids and I can't even imagine how it's going to be after next week when school and sports and clubs kick in and I can't get them anywhere. I'm sorry that i'm rambling, but i'm scared, confused and so very sad that it scares me even more. Has anyone ever heard of grand mal seizures so far apart? I know that i'm luckier than most because I don't have them all the time, but I just don't feel lucky right now. I just feel really, really sad! Thanks for letting me vent!
My name is Wendy and this is all very new to me. I had my first seizure at the age of 39 and didn't have another for three years. The first happened after taking my son to his little league game. I got out of the car and went down. I hit my head hard on the concrete parking lot. I had a grand mal seizure. Tests were done and nothing was found. I was put on dilantin, but had horrible reactions to it. I went off the Dilantin and was not put on anything else. It was pretty much written off as a one time fluke.
3 years went by, no medication, no obvious seizures...first one gone from memory. The day of my second, i was at work, and thought I caught the light of the flourescent lights in my office the wrong way. My right eye started flickering. It wouldn't go away so I put on my sunglasses. This has happened to me a few times before when I spend alot of time on the computer, so I thought nothing of it. It finally went away and I finished the day of work and started home.
I remember most of the ride home. But, suddenly, I was in my bedroom with the police and paramedics around me. Apparently, I made it to my street, had a seizure and ended up in my neighbors yard where he found me and got my husband. I was completely incoherent and babbling nonsense. I didn't recognize my neighbor or my husband. My husband took me home, changed me (my bladder had completely emptied during the seizure) and called 911. I thought they were all crazy and had no idea what was going on until I was in the hospital.
I am still in the process of all the testing, so I don't really have any answers yet, except that my MRI looked normal, so, thank god, no brain masses. I'm back to work but finding it really difficult. i don't know if it's the medication (Keppra 1,500mg a day) but my emotions are all over the place and I feel almost bi-polar. I'm either racing all over the place or crying. My husband has been taking me to work and to all of my doctor's appointments. My work has been great because i'm the sick one, but it's starting to affect his job because he's gone so much taking me all over the place. Also he feels as if everything is laid on him. It's starting to put alot of strain on our relationship, which makes me hate myself and my situation even more.
The drivers license thing is the worst. I feel as if every bit of my independence is gone and that is something that I have always valued more than anything. I have two kids and I can't even imagine how it's going to be after next week when school and sports and clubs kick in and I can't get them anywhere. I'm sorry that i'm rambling, but i'm scared, confused and so very sad that it scares me even more. Has anyone ever heard of grand mal seizures so far apart? I know that i'm luckier than most because I don't have them all the time, but I just don't feel lucky right now. I just feel really, really sad! Thanks for letting me vent!
