kSQ
Stalwart
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I had my first seizure just before Thanksgiving of 2021. I've had 8 more since then. Nothing over the last month. I'm on 1500 mg Keppra daily plus CBD as needed. Since maybe my 3rd seizure I've been reading various threads here to gain knowledge and get a feel for how people deal with their epilepsy, etc. After my first seizure (tonic-clonic and loss of consciousness), at the ER I had a CT and 2 MRI scans of my brain (one with a dye)--reportedly no tumor, scarring, etc. that might have caused the seizure. I had an EEG soon after my 2nd seizure. It was "normal." I understand that isn't unusual. A few comments:
1) I have found the various threads in the forum quite interesting and it's been nice to see the mutual support provided by participants. I've also checked out some of the music identified in one of the threads and found a couple good songs I hadn't heard before. Thanks for that.
2) There is a fair amount of discussion about different anti-seizure medications or combos of medications. Am I correct in saying that much of dealing with seizures is about getting the right drugs to "control" your seizures? What do you consider "in control?" Is it all about the frequency and severity of the seizures? How long without a seizure is long enough to feel in control? Does anyone ever really feel in control? Anything else involved that evokes control versus out-of-control?
3) In researching the drugs identified. I find that there are several anti-seizure drugs that identify side-effects that include seizures and/or depression. It doesn't seem odd to me that anyone with epilepsy would be prone to depression. I've been depressed off and on ever since my first seizure this past November. It does seems odd to me to include as a side effect the illness your trying to bring under control. Is it really a drug side effect or more of a breakthrough seizure? Can those be the same?
Anyway, I guess this is my way of saying hello.
KSQ
1) I have found the various threads in the forum quite interesting and it's been nice to see the mutual support provided by participants. I've also checked out some of the music identified in one of the threads and found a couple good songs I hadn't heard before. Thanks for that.
2) There is a fair amount of discussion about different anti-seizure medications or combos of medications. Am I correct in saying that much of dealing with seizures is about getting the right drugs to "control" your seizures? What do you consider "in control?" Is it all about the frequency and severity of the seizures? How long without a seizure is long enough to feel in control? Does anyone ever really feel in control? Anything else involved that evokes control versus out-of-control?
3) In researching the drugs identified. I find that there are several anti-seizure drugs that identify side-effects that include seizures and/or depression. It doesn't seem odd to me that anyone with epilepsy would be prone to depression. I've been depressed off and on ever since my first seizure this past November. It does seems odd to me to include as a side effect the illness your trying to bring under control. Is it really a drug side effect or more of a breakthrough seizure? Can those be the same?
Anyway, I guess this is my way of saying hello.
KSQ