New to Forum

[AmandaLynn]

:e:
Hi My name is Amanda, I'm 29 and I've had epilepsy since I was 11....I'm new here. I have partial-complex and tonic-clonic seizures, its made life complicated. I enjoy being out and about with family and friends, and I really miss driving (cant do with my epilepsy).

I've been on many AED's and still havn't found the right combo to control my seizures. I have had the Vagus Nerve Stimulator for almost 10 years. Since my epilepsy is still not managed I'm in the process of testing for possible epilepsy Surgery. onder:onder:

So I guess we'll see what tomorrow brings. Oh, and I'm open to any advice about the surgery thing....

~Amanda~

 

[RobinN]

Hi Amanda - Welcome to CWE
I am sure others will be around to discuss surgery options with you. My daughter wouldn't even let the doctor speak of it, so I am glad that we found a way to raise her seizure threshold by making nutritional changes.

I am glad that you decided to join us here.

 

[BuckeyeFan]

:cheers:

Welcome to our home.

:cheers:

 

[Nakamova]

Hi Amanda, welcome to CWE!

You can search for archival info on both VNS and Surgery using the search tab at the top. And feel free to visit post specific questions, as well as chat or vent as needed.

Best,
Nakamova

 

[Endless]

Welcome, Amanda. I am glad you are here. This is a great forum with lots of nice people with a ton of information. I've learned a lot from everyone.

 

[Jan4you]

{{{ HUGS AMANDA }}}​

​

I bet you are scared..worried and MAD about how seizures have changed and affected how you want to live your life. It is terrible when it does that. Do you still have friends and family that care anyway??

How much have they told you about having surgery? You can ask folks here who have had it..my hubby had a temporal lobectomy and it helped but did not completely stop his seizures..but changed them to nighttime only and no more auras and he had less severe tonic clonics..so no biting tongue...

ASK and we'll help you and SUPPORT you lots my dear

Warmly, Jan