I have found it hard for people without epilepsy to understand what it feels like on a daily basis. I have partial seizures 1-6 times per day, but it is now rare for me to have a grand mal seizure because of my medicine. I keep losing my jobs because employers don't want to deal with liability issues or lost time. My fiance doesn't seem to understand that my meds or my condition make me feel exhausted all day like I haven't slept for days. While I am grateful that my tongue has always grown back after biting it off, I am still frustrated with the weird and sudden effects my seizures have on my mental and emotional state. I have done the sleep study, It took them a few days to realize they should stop feeding me meds if they wanted a measurable seizure to occur. I was going to have the surgery to remove the part of my brain that causes my epilepsy, but lost my job for using FMLA time and never got the chance. I would like to know that I am not the only one struggling out there because of this condition. It gets pretty lonely feeling like I am the only one who understands it.
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rakowskidp
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Brandon, welcome to the community, and I hope you get answers to some of your questions. This is an amazing group of people - so helpful, thoughtful, compassionate and full of information!
Man, that's completely outrageous. I didn't think you could lose your job for using FMLA time. That's the whole point of FMLA time, isn't it? Sorry you had to go through this.
Man, that's completely outrageous. I didn't think you could lose your job for using FMLA time. That's the whole point of FMLA time, isn't it? Sorry you had to go through this.
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Hey BrandonA, welcome to CWE!
I hope you can get a treatment plan back on track -- it's no fun struggling with both the seizures and the side effects. In the meantime, you've come to the right place. Folks here can provide empathy, support, advice, laughs, tears. Members have "been there, done that," with just about everything epilepsy-related.
Make yourself at home!
Best,
Nakamova
I hope you can get a treatment plan back on track -- it's no fun struggling with both the seizures and the side effects. In the meantime, you've come to the right place. Folks here can provide empathy, support, advice, laughs, tears. Members have "been there, done that," with just about everything epilepsy-related.
Make yourself at home!
Best,
Nakamova
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Hi Brandon!!! Welcome, I'm kinda new here too... There seem to be people who can really be helpful on here.. Eveyone's in a similar boat so we all understand to one sort or another.. 
It can be difficult, just remember to keep your head up. you're not alone! I have been having a difficult time too, I had one in September and feel like I haven't been myself since.. Best of luck to you and again, welcome!!
It can be difficult, just remember to keep your head up. you're not alone! I have been having a difficult time too, I had one in September and feel like I haven't been myself since.. Best of luck to you and again, welcome!! Hi Brandon, I hope you find comfort here. I'm still in the diagnosis stage, but already feel like no one really understands- no one will accept that something is wrong, 'maybe you just fainted' 'have you had any more faints?' etc. It's hard enough for me to accept it without trying to explain to other people.
Keep your chin up.
Keep your chin up.
