marshlakemom
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Hi All from Canada
On August 3,2008 I had my first seizure (that I was aware of), and it was a Grand Mal. Of course I scared the heck out of everybody around me, as this has just never happened before. There is epilepsy in our family.
For as long as I can remember, I've had problems with vertigo, dizzy spells, the sensation I'm moving, extremely bad insomnia (been out to sleep disorder's clinic twice to no avail), depression and anxiety. All of this due to sleep deprivation, or so I thought. I've had issues with tunnel vision from time to time, the feeling someone is pulling the rug out from beneath my feet, sudden onsets of emotions and sweating, etc. Black spots in front of my eyes for no reason at all, minute periods of black out, forgetting. Again my doctors and I put it down to sleep deprivation. I lost my driver's license several years back for 3 years as I found myself driving into oncoming traffic, and not sure how I got there. I've also had issues with driving, and I tend to "feel extremely spaced out and not in tune" with my vehicle, always questioning my judgment. Almost fearful. I did have my driver's license re-instated two years ago, only to loose it again when I had this grand mal seizure...... The hard thing for me was coping while feeling this way everyday and carrying on like all was fine with me when around family and friends, when in actuality my brain was creating havoc with me. I know I'm forgetting to mention several important factors here, but just can't think that clearly this morning.
I must be coming across as one nut case here, but honestly I"m not. I'm retired now, but held down a responsible job for 30 years.
In any event, after having my grand mal a few weeks ago, my family practitioner sent me to see a Neurologist who quickly diagnosed me with having on-going "seizure activity", and put me anti seizure medications...500 mg. of divalproxex 2x/daily. I was in denial for 10 days, didn't take the medication, but was feeling so rough that I started taking it about a week or so ago. And guess what.....my sleep has improved 70-80%, my dizzy spells are clearing up, my head is clearer, and most other symptoms I suffered with for 35 years seem to be improving.
I guess my question is:
Are there any folks on here who have been diagnosed with having on-going seizure activity, and if so were you put on medication? Is there such a thing as seizure activity that just keeps on going.......I feel like the Energizer Bunny here.
Any other input would be appreciated.
Deb
On August 3,2008 I had my first seizure (that I was aware of), and it was a Grand Mal. Of course I scared the heck out of everybody around me, as this has just never happened before. There is epilepsy in our family.
For as long as I can remember, I've had problems with vertigo, dizzy spells, the sensation I'm moving, extremely bad insomnia (been out to sleep disorder's clinic twice to no avail), depression and anxiety. All of this due to sleep deprivation, or so I thought. I've had issues with tunnel vision from time to time, the feeling someone is pulling the rug out from beneath my feet, sudden onsets of emotions and sweating, etc. Black spots in front of my eyes for no reason at all, minute periods of black out, forgetting. Again my doctors and I put it down to sleep deprivation. I lost my driver's license several years back for 3 years as I found myself driving into oncoming traffic, and not sure how I got there. I've also had issues with driving, and I tend to "feel extremely spaced out and not in tune" with my vehicle, always questioning my judgment. Almost fearful. I did have my driver's license re-instated two years ago, only to loose it again when I had this grand mal seizure...... The hard thing for me was coping while feeling this way everyday and carrying on like all was fine with me when around family and friends, when in actuality my brain was creating havoc with me. I know I'm forgetting to mention several important factors here, but just can't think that clearly this morning.
I must be coming across as one nut case here, but honestly I"m not. I'm retired now, but held down a responsible job for 30 years.
In any event, after having my grand mal a few weeks ago, my family practitioner sent me to see a Neurologist who quickly diagnosed me with having on-going "seizure activity", and put me anti seizure medications...500 mg. of divalproxex 2x/daily. I was in denial for 10 days, didn't take the medication, but was feeling so rough that I started taking it about a week or so ago. And guess what.....my sleep has improved 70-80%, my dizzy spells are clearing up, my head is clearer, and most other symptoms I suffered with for 35 years seem to be improving.
I guess my question is:
Are there any folks on here who have been diagnosed with having on-going seizure activity, and if so were you put on medication? Is there such a thing as seizure activity that just keeps on going.......I feel like the Energizer Bunny here.
Any other input would be appreciated.
Deb
We're a pretty friendly group here, so feel free to ask questions, vent, or just chime in. 
fft:
