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mamasita

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I just wanted to say hello and thank you to all of you strong souls. Reading what you have said has helped me understand quite a bit more.
I do not suffer with epilepsy, but I do suffer along side someone who does. After a life time of personal hardships, two bad marriages, I met my soul mate, the man I had waited all my life for. For a year we were blissfully happy, then he got sick, a cold that turned into Pneumonia. For some odd reason this is when the seizures started.
He has been away in hospital in another province for three months now, trying to get a handle on this. Left Temporal lobe. Medications are not helping but he keeps trying. The Doctors have now pinpointed a cause; infection from pneumonia, and even where the seizures start and are talking surgery.
I am scared, but I will stand beside him and support him through thick and thin. We will deal with whatever life has to throw at us…. Together.
It is just nice to know that when I am feeling sad, lonely and helpless, there are others to guide me.
 
Hi Mamasita, I just wanted to welcome you and offer you a warm hug and tell you that you and your husband are both in my prayers. As hard as it is for those of us who suffer with this condition it is also difficult for our families to watch us. So please remember to take time to take care of yourself, ok? Be good to you. :)
 
BrandiBrat said:
As hard as it is for those of us who suffer with this condition it is also difficult for our families to watch us.
Click to expand...

so true. it's hard for us to not get caught up in ourselves and lose track of what our other halves are watching and dealing with on a regular basis. i try to thank my boyfriend alot but know i could do better, he is so amazing holding me through every grand mal and helping pick up the pieces when it's all over and i'm a mess once again. we really do appreciate you guys, pls know it.

and yes, as brandi said, welcome. you'll settle in here in no time as we all have. feel free to do whatever you need, laugh, cry, scream, vent, or just come on to chat. that's the cwe family girl :)
 
Hi mamasita, adding my welcome to the others'!

An epilepsy diagnosis brings with it lot of questions and a lot of stress for everyone involved, including friends and family. Please take advantage of the help and support CWE members can provide. This site is a terrific resource, and I'm glad you've found us.

Best,
Nakamova
 
I just wanted to thank you all for your kind welcome.
This is a very confusing journey for me. As a single mom for over 10 years, my mommy instinct comes roaring out full force and I want to "help" to "fix" what is wrong, to make the boo-boos better lol, and I cant. Trying to wrap my head around the fact that there are so many different types of seizures and medications, so many good doctors and so many bad. (sigh) daunting. And yes, in all honesty, the pity party. Hell no, not for me, but for him. I like my illnesses more cut and dry..lol. 4 time cancer survivor. But epilepsy is a tricky one, "E" snuck up behind my rough and tumble cowboy and smacked him full on in the left temporal lobe at the age of 51. Sucks big time, and pi**es me off!
sorry to rant....
K
 
You rant all you want!! E pisses me off, too!! Believe me, I've never hated anything in my life until this. Cuts a person off at the knees and your husband is extremely lucky to have such a supportive person as you.
 
Mamasita,
Good for you for being proactive and supportive. As someone who has dealt with E for 35+ years, the best "medicine" has been the support and help of those around me. When I doubt myself and get down because of all the trials that come with E, it is nice to feel the love and support of friends and family <3
I'm sure that your husband would be so happy to know that you are learning and educating yourself on E and ways to live the best life possible.
Good luck and so glad that you are here :)
 
Gday ,
I was very pissed off too when siezures started at around 40 , it is great that he has you to help him through , i wish you both all the best .
 
Im a newbie here but have plenty of experience with E
Stress is a comon factor that increases seizures ... new life .. new situations .. thats all in the toll for our conditions.
Explore the medicaitons first ... befor you/yours jump into the surgury situation ...
i suffered for with 26 sizures a month ... before i found my confort zone ... and its differtnt for everyone ...
i wish you well ...

d-no
 
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