Darth Cajun
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Hello everyone. I am a 32 year old male from New Orleans. I've never joined a site such as this, but I hope we can all help each other with what we're going through.
A little background: My first seizure happened when I was 18 years old, a grand mal. I saw multiple neurologists and other doctors but we never found any specific cause. I have continued having them about once every six months since then. Having epilepsy has stopped me from having jobs many times. I have learned to live with it mostly, but it is very tiring to deal with sometimes. This year, 2017, has been my worst by far. In April of this year I had a grand mal in the lobby of my apartment building, fell backward, hit the back of my head on the floor, had to get four stitches in the center of my skull where the occipital bone protrudes, and ended up having four grand mals back to back that night. Ever since that set, I have quit my job due to extreme anxiety, depression, and many other cognitive after effects likely caused by a concussion from the fall. The anxiety and depression have completely stopped me from being able to work since April, but my body was slowly healing. Things got better over the summer. I was finally able to get out of the house by myself and go on walks without panic attacks, I had energy finally, I was hanging out with old friends, life was getting back to normal, or so I thought. in mid-October, I had another series of grand mals, this time around six I'm told. Thank goodness I was at a friend's house when the first happened. He told me I turned blue as a smurf, with veins popping out, and my hands and jaw clenched so tightly he thought I was going to break a bone. In the ambulance I had to be given a huge dose of Keppra and Ativan to stop convulsing. I slept in the hospital for 36 straight hours. MRI and EEG showed nothing out of the ordinary, once again. The after effects of these multiple seizures are having a significantly negative effect on my life. I have completely withdrawn from any and all social activities and stay anxious even when at home. I have chronic partial simples at home on a daily basis, at least that's what I believe they are. I feel lightheaded and dizzy constantly when not sitting down, and even when sitting sometimes. It has become tough to watch tv, look at my phone or any other type of screen, or even read a book due to dizziness. This dizziness does not happen every single day, as I'm sure you all know there are good days and bad days, but when it does it is difficult to overcome.
I guess I'm asking if anyone else has had anything similar happen? Especially the after effects (anxiety mainly).
I joined this site to hopefully learn more about my condition and to use my knowledge to help others.
One last thing though...I am a very positive person and rarely talk about these negative side effects with my friends or family, so don't think I'm always going to be negative and on the 'dark side' per say on this site
A little background: My first seizure happened when I was 18 years old, a grand mal. I saw multiple neurologists and other doctors but we never found any specific cause. I have continued having them about once every six months since then. Having epilepsy has stopped me from having jobs many times. I have learned to live with it mostly, but it is very tiring to deal with sometimes. This year, 2017, has been my worst by far. In April of this year I had a grand mal in the lobby of my apartment building, fell backward, hit the back of my head on the floor, had to get four stitches in the center of my skull where the occipital bone protrudes, and ended up having four grand mals back to back that night. Ever since that set, I have quit my job due to extreme anxiety, depression, and many other cognitive after effects likely caused by a concussion from the fall. The anxiety and depression have completely stopped me from being able to work since April, but my body was slowly healing. Things got better over the summer. I was finally able to get out of the house by myself and go on walks without panic attacks, I had energy finally, I was hanging out with old friends, life was getting back to normal, or so I thought. in mid-October, I had another series of grand mals, this time around six I'm told. Thank goodness I was at a friend's house when the first happened. He told me I turned blue as a smurf, with veins popping out, and my hands and jaw clenched so tightly he thought I was going to break a bone. In the ambulance I had to be given a huge dose of Keppra and Ativan to stop convulsing. I slept in the hospital for 36 straight hours. MRI and EEG showed nothing out of the ordinary, once again. The after effects of these multiple seizures are having a significantly negative effect on my life. I have completely withdrawn from any and all social activities and stay anxious even when at home. I have chronic partial simples at home on a daily basis, at least that's what I believe they are. I feel lightheaded and dizzy constantly when not sitting down, and even when sitting sometimes. It has become tough to watch tv, look at my phone or any other type of screen, or even read a book due to dizziness. This dizziness does not happen every single day, as I'm sure you all know there are good days and bad days, but when it does it is difficult to overcome.
I guess I'm asking if anyone else has had anything similar happen? Especially the after effects (anxiety mainly).
I joined this site to hopefully learn more about my condition and to use my knowledge to help others.
One last thing though...I am a very positive person and rarely talk about these negative side effects with my friends or family, so don't think I'm always going to be negative and on the 'dark side' per say on this site
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