Kaitybugsmom
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Hi everybody 
My name is Heather and our daughter had her first seizure a week ago today. She is 15 and had spent the night at a friends house, a girls slumber party 7 girls total. One of the girls mom called me at 3:17am to tell me that our daughter was having a seizure and that the EMT wanted to talk to me. He asked me some general questions and said they would meet me at the ER. They did a tox screen - negative, blood work - normal, CT scan -normal. We had a follow up appointment with ther primary physician on Monday and she had an EEG on Thursday that we are still waiting for results on. Epilepsy runs on her fathers (my ex husband of 14 years) side of the family. He has it, his mother had it, all of his mothers sisters had it and her brother (who lives with my ex) has it. Her physician said "walks like a duck, looks like a duck, quacks like a duck...its probably a duck" however he does not want to start her on medication before he has all the information, which in the end is ok considering some of the side effects the meds bring with them. I dont want her on something if she doesnt need it. So here we are, on this roller coaster ride...not knowing where to go from here, what to do, how to feel. Im hoping that by joining this group that I can find the support of others who are parents with a child or children with epilepsy, and support/encouragement/advice from young teens on the forum who have epilepsy and how I can best support my daughter without being a control freak. Thats it...in a very large nutshell.
My name is Heather and our daughter had her first seizure a week ago today. She is 15 and had spent the night at a friends house, a girls slumber party 7 girls total. One of the girls mom called me at 3:17am to tell me that our daughter was having a seizure and that the EMT wanted to talk to me. He asked me some general questions and said they would meet me at the ER. They did a tox screen - negative, blood work - normal, CT scan -normal. We had a follow up appointment with ther primary physician on Monday and she had an EEG on Thursday that we are still waiting for results on. Epilepsy runs on her fathers (my ex husband of 14 years) side of the family. He has it, his mother had it, all of his mothers sisters had it and her brother (who lives with my ex) has it. Her physician said "walks like a duck, looks like a duck, quacks like a duck...its probably a duck" however he does not want to start her on medication before he has all the information, which in the end is ok considering some of the side effects the meds bring with them. I dont want her on something if she doesnt need it. So here we are, on this roller coaster ride...not knowing where to go from here, what to do, how to feel. Im hoping that by joining this group that I can find the support of others who are parents with a child or children with epilepsy, and support/encouragement/advice from young teens on the forum who have epilepsy and how I can best support my daughter without being a control freak. Thats it...in a very large nutshell.