ESG.TaniaJaye
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Looking back through my life there has always been something there. Mild. In the background. Numerous teacher comments about drifting off into my own world, sudden changes of direction in conversations, lots of de ja vu, problems with recurring migraines, nothing that really signified a problem, but maybe an indication of a predisposition to what was to come later on.
A ten year relationship which slowly turned hostile left me with a small amount of separation damage in my left temporal lobe, and at the same time of discovering this, a very small amount of scarring in my frontal lobe of the same side was also discovered which may or may not have been there previously.
The first indication that something was wrong and therefore prompted the testing and eventual discovery and diagnosis was a tonic seizure which took place on the morning of the 3rd December 2007 while I was driving my car, and was followed just over an hour later by a full tonic clonic at the Doctor's surgery. A week later I had more. I spent 10 days in hospital, 8 of these days I have no memory of due to ongoing status epilepticus which was unresponsive to emergency treatments. Their only option was full sedation as the seizures were wreaking havoc on my body. I lost almost 2 stones in weight in those ten days....and am lucky not to have lost my life at the same time.
Much of those first few months are a blur, and most of the rest is completely forgotten into the black hole of memories which seemed to have developed out of the blue at the same time.
I was originally diagnosed with Non Epileptic Attack Disorder due to the inneffectiveness of treatmet during that hospital submission, coupled with the stress of my violent homelife and regular overworking to avoid that homelife. It wasn't until several psychiatric and cognitive behaviour assessments had been completed over the following 10 months, that the idea of epilepsy was looked at again and further testing finally found the truth. TLE.
By this time I had left that relationship behind and found love. Real love. For the first time in my life I was with someone who really cared for me and accepted me. I am still with that special person now, and happier than ever.
A ten year relationship which slowly turned hostile left me with a small amount of separation damage in my left temporal lobe, and at the same time of discovering this, a very small amount of scarring in my frontal lobe of the same side was also discovered which may or may not have been there previously.
The first indication that something was wrong and therefore prompted the testing and eventual discovery and diagnosis was a tonic seizure which took place on the morning of the 3rd December 2007 while I was driving my car, and was followed just over an hour later by a full tonic clonic at the Doctor's surgery. A week later I had more. I spent 10 days in hospital, 8 of these days I have no memory of due to ongoing status epilepticus which was unresponsive to emergency treatments. Their only option was full sedation as the seizures were wreaking havoc on my body. I lost almost 2 stones in weight in those ten days....and am lucky not to have lost my life at the same time.
Much of those first few months are a blur, and most of the rest is completely forgotten into the black hole of memories which seemed to have developed out of the blue at the same time.
I was originally diagnosed with Non Epileptic Attack Disorder due to the inneffectiveness of treatmet during that hospital submission, coupled with the stress of my violent homelife and regular overworking to avoid that homelife. It wasn't until several psychiatric and cognitive behaviour assessments had been completed over the following 10 months, that the idea of epilepsy was looked at again and further testing finally found the truth. TLE.
By this time I had left that relationship behind and found love. Real love. For the first time in my life I was with someone who really cared for me and accepted me. I am still with that special person now, and happier than ever.
Feel free to ask questions, chime in , or just vent when needed.