Hello All, I'm not really sure where to begin. Obviously i'm new, a friend thought it would be a great idea to try and talk to people with similar experiences as I am really struggling to speak to anyone about whats going on as I they dont seem to understand and more than anything i just feel embaressed. I was diagnosed about a year ago, was happy in a way to finally have an answer as I have experienced this for many years. Not really coping great but maybe after talking to other people here it will start to make a wee bit more sense.
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Welcome to the Coping With Epilepsy Forums
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epileric
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Welcome Seri
I've had seizures all my life & I have to agree that it has felt very lonely in that nobody can really understand what you're going through. This place definitely gets rid of that.
Make yourself at home. We've got a fantastic library with all sorts of info, or just hang in the kitchen if you want to talk. We've even got a padded room where you can vent all you like.
I've had seizures all my life & I have to agree that it has felt very lonely in that nobody can really understand what you're going through. This place definitely gets rid of that.
Make yourself at home. We've got a fantastic library with all sorts of info, or just hang in the kitchen if you want to talk. We've even got a padded room where you can vent all you like.
travel bug
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Hi Seri,
I think you'll like it here, there are lots of nice people and loads of good information. Read through threads and ask any question you may have; you'll be surprised by the number of people you can identify with and how many people will have answers for you. And even if no one has an exact answer, you'll at least get support and understanding which is invaluable
I think you'll like it here, there are lots of nice people and loads of good information. Read through threads and ask any question you may have; you'll be surprised by the number of people you can identify with and how many people will have answers for you. And even if no one has an exact answer, you'll at least get support and understanding which is invaluable
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Hi Seri, welcome!
It can be tough when folks around you don't "get it" about epilepsy. At CWE the members definitely get it, and can offer all sorts of advice and support. Here in the U.S., November is Epilepsy Awareness Month, so it's a great time to try and educate the folks around you -- if you think they'll listen. Here's a good place to start:
http://epilepsytalk.com/2009/09/08/epilepsy-myths-live-on…/
It can be tough when folks around you don't "get it" about epilepsy. At CWE the members definitely get it, and can offer all sorts of advice and support. Here in the U.S., November is Epilepsy Awareness Month, so it's a great time to try and educate the folks around you -- if you think they'll listen. Here's a good place to start:
http://epilepsytalk.com/2009/09/08/epilepsy-myths-live-on…/
daisy.girl
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Hi Seri...and welcome...
What kind of seizures do you have?
What kind of seizures do you have?
Endless
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Hi, Seri,
Welcome! This place has been a lifesaver for me, too. Finally, a place where people understand what I am experiencing.
Are you being treated by your primary care physician, a neurologist, or an epilepsy specialist (epi)? Has your doc had you on any other meds than Lamictal? I'm surprised he wanted to add another drug right away - usually neurologists try for monotherapy (one drug) first before they combine them. I'm sure he has a very good reason - like wanting to stop your seizures very quickly.
Everyone reacts differently to each drug, so another may control your seizures very well. Hang in there. This does get better.
Welcome! This place has been a lifesaver for me, too. Finally, a place where people understand what I am experiencing.
Are you being treated by your primary care physician, a neurologist, or an epilepsy specialist (epi)? Has your doc had you on any other meds than Lamictal? I'm surprised he wanted to add another drug right away - usually neurologists try for monotherapy (one drug) first before they combine them. I'm sure he has a very good reason - like wanting to stop your seizures very quickly.
Everyone reacts differently to each drug, so another may control your seizures very well. Hang in there. This does get better.
Hiya, Im being treated by a neurologist, hes been great really set me at ease with everything.
I know what your saying, i thought myself that i would be on this medication for longer then something else as it does seem alot. I have to trust my doctor though dont i as i dont really know about these things. Im still having the same problems so not sure if this is why, although there was one sympton in particular that was getting to me and this seems to be alot lighter now, happy days.
Has lamictal worked for anyone else?
Seri
I know what your saying, i thought myself that i would be on this medication for longer then something else as it does seem alot. I have to trust my doctor though dont i as i dont really know about these things. Im still having the same problems so not sure if this is why, although there was one sympton in particular that was getting to me and this seems to be alot lighter now, happy days.
Has lamictal worked for anyone else?
Seri