hedtrouble
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Hope this time Im doing something right. Im from Aus down under. Am 54 had temporal lobe epilepsy for nearly 50 years
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Welcome to the Coping With Epilepsy Forums
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Hello and welcome...we have at least several members from Australia, so you won't be alone! Don't worry about doing everything right, you'll be just fine. Glad you found us, and I am sure you will find a lot of support and meet some great people here.
hedtrouble
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Thanks
Thanks Minkles guess the more I try the better it will gets. Cheers Hedtrouble
Thanks Minkles guess the more I try the better it will gets. Cheers Hedtrouble
travel bug
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Hi Hedtrouble:hello:
Welcome to CWE! Hope you are doing well
As Minkles said, there are several people here from Australia; you all can laugh at all of us up-top who are complaining about the cold. Or at least think of us as you enjoy your summer
Welcome to CWE! Hope you are doing well
As Minkles said, there are several people here from Australia; you all can laugh at all of us up-top who are complaining about the cold. Or at least think of us as you enjoy your summer
hedtrouble
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Thank you one & all
Hi ya everyone thank you for making me feel so welcome. Im probably not on when most of you are so when I do get in its such a buzz to receive a welcome. :clap:Mmmm that doesnt look quite right might need some help cant get the cutie pies on the right of screen to pop up on my message. Hope everyone is well. Nice to have something in common with people even though it is "a bad head day" Cheers, Hedtrouble
Hi ya everyone thank you for making me feel so welcome. Im probably not on when most of you are so when I do get in its such a buzz to receive a welcome. :clap:Mmmm that doesnt look quite right might need some help cant get the cutie pies on the right of screen to pop up on my message. Hope everyone is well. Nice to have something in common with people even though it is "a bad head day" Cheers, Hedtrouble
travel bug
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Hey, you never know when you'll find people logged in; we keep all sorts of hours
Sorry about the bad head day, hope you feel better soon
Sorry about the bad head day, hope you feel better soon
hedtrouble
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Hey Bug thats sweet of you. The head prob is ongoing am getting older too but hey there's lots out there worse off. All of my stuff goes on in the head. Apart from the E have got tinnitus, vertigo, had brain aneurysm clipped nearly 2 years ago. Now that hurt. But life is'nt that bad, I still have a sense of humour. Tell me if its not ok to call you bug, I think its kinda cute.
hedtrouble
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Hey Bug, Hope you dont mind but I've just read all about you. My god you have been in the wars. Do you mind me asking, are you tumor free now?? As I said earlier there's always someone worse off than yourself but you, my friend, are very brave. I admire people such as yourself. Cheers, Hedtrouble
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travel bug
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Hey hedtrouble
I don't mind being called bug; it is kind of cute
Brain tumors are scary, but I think aneurysms are scarier because of their unpredictability. But let's face it, the brain is one part of the body you just don't want to mess with
It may be that we have both been helped by the same amzing man: the doctor who performed my tumor resection is a famous neurosurgeon who is mostly known for his work with aneurysms. He invented a? the? (not sure how many types there are) aneurysm clip - the Yasirgil Aneurysm Clip - along with many other tools and surgical techniques. It's a small world
However, as great a surgeon as he is (was - I think he's given up surgery now that he is 85 years old, he was 83 when he did my surgery) he wasn't able to remove much of the tumor because it had infiltrated too much healthy tissue. The kind of tumor I have is a good news/bad news situation. Though it's technically malignant, it is slow growing and not very aggressive, however, it invades the brain in such a way that it's hard to remove without doing more harm than good. I've done chemotherapy and now have a pretty good prognosis. On the whole I'd say I'm pretty lucky
What about your aneurysm, if I may ask? Was it something that happened all of a sudden, or did you have symptoms that lead you to have an MRI and then face the decision to have surgery? Either way, it must have been frightening. I think that you are the brave one.
By the way, I love your country. I visited step family there a long time ago (don't want to say how long) though I didn't make it to Victoria.
I don't mind being called bug; it is kind of cute
Brain tumors are scary, but I think aneurysms are scarier because of their unpredictability. But let's face it, the brain is one part of the body you just don't want to mess with
It may be that we have both been helped by the same amzing man: the doctor who performed my tumor resection is a famous neurosurgeon who is mostly known for his work with aneurysms. He invented a? the? (not sure how many types there are) aneurysm clip - the Yasirgil Aneurysm Clip - along with many other tools and surgical techniques. It's a small world
However, as great a surgeon as he is (was - I think he's given up surgery now that he is 85 years old, he was 83 when he did my surgery) he wasn't able to remove much of the tumor because it had infiltrated too much healthy tissue. The kind of tumor I have is a good news/bad news situation. Though it's technically malignant, it is slow growing and not very aggressive, however, it invades the brain in such a way that it's hard to remove without doing more harm than good. I've done chemotherapy and now have a pretty good prognosis. On the whole I'd say I'm pretty lucky
What about your aneurysm, if I may ask? Was it something that happened all of a sudden, or did you have symptoms that lead you to have an MRI and then face the decision to have surgery? Either way, it must have been frightening. I think that you are the brave one.
By the way, I love your country. I visited step family there a long time ago (don't want to say how long) though I didn't make it to Victoria.
hedtrouble
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Hey Bug
I guess we could argue who is the bravest but in your case its still ongoing, me Im done & to be quite honest if I got another one Id be terrified. I trundled off to the hosp by myself very early in the morning, had a well known Prof by the name of Andrew Kaye do mine. It wasnt that big but it had taken up 3 vessels & I didnt want to play around with a bubble in my head which if it burst didnt have a very good prognosis.
onder: They told me the after effects wouldn't be painful. WRONG. I couldn't open my mouth when I woke up. They'd cut right from my forehead to the bottom of my ear, 48 staples. Every time they gave me morphine I threw up. NICE. And my worse fear, a catheter. Strangely enough it didn't bother me much. Its a year & a half now. What first took me to the neuro was a tremor in my L hand so off for MRI. Thats when they found it.:clap: Having things wrong inside your head be it headache through to a mental issue & all the nasties in the middle is a pain in the ....know what I mean?? Once the healing on the outside is done its easy for people to forget what you've been through or going through, Take care of the most important person, You, Bernie.
I guess we could argue who is the bravest but in your case its still ongoing, me Im done & to be quite honest if I got another one Id be terrified. I trundled off to the hosp by myself very early in the morning, had a well known Prof by the name of Andrew Kaye do mine. It wasnt that big but it had taken up 3 vessels & I didnt want to play around with a bubble in my head which if it burst didnt have a very good prognosis.
onder: They told me the after effects wouldn't be painful. WRONG. I couldn't open my mouth when I woke up. They'd cut right from my forehead to the bottom of my ear, 48 staples. Every time they gave me morphine I threw up. NICE. And my worse fear, a catheter. Strangely enough it didn't bother me much. Its a year & a half now. What first took me to the neuro was a tremor in my L hand so off for MRI. Thats when they found it.:clap: Having things wrong inside your head be it headache through to a mental issue & all the nasties in the middle is a pain in the ....know what I mean?? Once the healing on the outside is done its easy for people to forget what you've been through or going through, Take care of the most important person, You, Bernie.
travel bug
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Wow!
I said before that I thought I've been pretty lucky, but after reading what you went through, I know I'm lucky.
I experienced surprisingly little pain, so I never had to take heavy duty pain killers and deal with their side-effects. The main problem I had - the inability to move my right leg - I had been warned was a distinct possibility,(My local surgeon's exact words were, "Your brain will be pretty p####d off for a while"), so it didn't frighten or worry me..well, not much.
You were smart to take your hand tremor seriously and go to the neurologist. That probably saved your life! Many people can be so stubborn about going to the doctor that they end up at the hospital by way of an ambulance.
Anyway, you take care of YOURSELF too
I said before that I thought I've been pretty lucky, but after reading what you went through, I know I'm lucky.
I experienced surprisingly little pain, so I never had to take heavy duty pain killers and deal with their side-effects. The main problem I had - the inability to move my right leg - I had been warned was a distinct possibility,(My local surgeon's exact words were, "Your brain will be pretty p####d off for a while"), so it didn't frighten or worry me..well, not much.
You were smart to take your hand tremor seriously and go to the neurologist. That probably saved your life! Many people can be so stubborn about going to the doctor that they end up at the hospital by way of an ambulance.
Anyway, you take care of YOURSELF too