Hi everyone, I am the caregiver for my husband who has developed a seizure disorder. It started with ventricular tachycardyma (technically not heart attacks, but still required the defibrillator), twice. Then within a few hours, he was in status epilepticus. They had to sedate him for two weeks until they could find the right combination of anti-convulsants. Since then, we've had long slow recovery full of setbacks. Still no diagnosis for the underlying cause, they call it "undiagnosed white matter disease". He has minor brain damage from lack of oxygen during the "heart attacks", and other damage from the brain lesions, seizures, etc.
He is currently on Dilantin, Keppra, Epival, Clobozam, and Primidone. As well as other stuff for prostate and depression. I can't tell what symptoms are side effects, which drugs are or are not helping. There is just too much going on. Keeping track of his history and day-to-day health is exhausting. Added to us grieving for our former lives, and me trying to help him cope with life in the hospital and accepting his physical limitations.
It's been a year and he keeps getting infections and having to return to the hospital. We are coming to the point where the hospital staff is telling me he needs to be in a home. The rough stuff is still to come.
I'll stop here, this seems to be a pretty long introductory post!
He is currently on Dilantin, Keppra, Epival, Clobozam, and Primidone. As well as other stuff for prostate and depression. I can't tell what symptoms are side effects, which drugs are or are not helping. There is just too much going on. Keeping track of his history and day-to-day health is exhausting. Added to us grieving for our former lives, and me trying to help him cope with life in the hospital and accepting his physical limitations.
It's been a year and he keeps getting infections and having to return to the hospital. We are coming to the point where the hospital staff is telling me he needs to be in a home. The rough stuff is still to come.
I'll stop here, this seems to be a pretty long introductory post!
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