Non epileptic seizures - twin boys

[Juli]

Hi! I'm new to this forum and wanted to introduce myself. I am a mom of twin boys (4 yes old). Both my boys are currently having non epileptic seizures at least once a month. They have been seen by a pediatric neurologist that only did a physical exam on them (no EEG or MRI). I explained in detail how the seizures are happening ( my child falls, feels pain regardless of how minor or severe the fall is, if he gets too overwhelmed then he goes into a triggered stage where he arches his back, arms go straight and fists close and then after 5 seconds relaxes completely. At times this whole process can be 10 seconds or 30 seconds. The seizures has been happen more often and tonight one of my sons had a seizure where he was spitting from his mouth and urinated on himself. This seizure was the longest he has had before roughly 30 seconds of arching his back, spitting and then alert enough to cry.

Any ideas or suggestions is appreciated. The neurologist said they should just grow out of it once my children become more mature and can increase their pain tolerance. I hope that is the answer. What are your thoughts?!?!??

 

[masterjen]

It is unusual for children this young to have psychogenic seizures - is that what the neurologist is calling them?
What causes the falls? Is it just playing and then he trips and falls or tumbles while rough-housing, or does the child seem to stiffen and then fall as if a seizure causes the fall?
I would demand EEGs at the very least, and if this neurologist is not willing then ask to see another neurologist.

 

[Juli]

Thank you masterjen for your response. I will research psychogenic seizures as I am not familar with that term. The seizures are happening after the my children are feeling pain (both of them are having them). My husband and I at times have been able to distract them from getting overwhelmed from the pain and slipping into the seizure. It can occur from running and falling on the road or as minimal as falling on carpet. The only correlation I have figured out is the more pain the longer the seizure and time for my child to be alert again.