Not coping

[Andrewbanker]

Had the appointment with the neurologist. He was pretty concenred about my state, commenting in how tired and stressed I look. I was proabably feeling the best I have in weeks. It does seem that any little bit of stress leads me to an aura or trembling fingers straight away.
He has added Lamictal which I need to go on gradually (up to 50mg) with the Keppra. He plans on reducing the Keppra back to 500mg twice a day.
Boy I am looking forward to some holidays.....

Well, last week of my 4 weeks off. Feeling pretty good, and have had plenty of rest. I have adjusted to the new medication.

I am getting quite a bit of "tingling fingers" late in the day, especially when I go to bed. It is the same feeling I get before a major seizure, but it never comes. I am finding it harder to get uninterrupted sleep since moving going on the new meds. I still get occasional auras which make me panic. I am trying to avoid driving.

I really appreciate the support from those on the forum.

 

[AMCB]

I'm new to the forum and have already found it helpful to talk to those who understand this strange life doctors want us to call new normal. HA nothing normal about it! My life has changed soooo much. No more working, have to stay out of stressful situations, need more sleep, used to sing on praise team at church now rarely go to church, can't drive Christmas was really challenging due to decorations and lights. My daughters did such a great job decorating the house then I had to go around unplugging lights or risk getting dizzy when alone. WOW not the empty nest years I envisioned.



Now my first bio grand baby is due in July and I know I can't be the help to my daughter that my mom was for me