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HMalsbary

HMalsbary

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:woot:

A year ago I was homeless with my hubby, but now living with my 82 year old mom who still works. Yup, she still works. She works as a cashier at a supermarket, part time. My Hubby and I were homeless in Mesa,Az. and it is no fun having epilepsy and being homeless. The EMT's, when you have a seizure outside think you are faking it. Never mind the one nurse my hubby & I had in the emergency room waiting room, thought it wasn't to bad since I was some what coherent. Wail I was trying to sit in one of their chairs & not fall out for 45 min. Sorry, still a bit, bitter.

So, stress brings on my seizure & it has been crazy stress here at my moms. Yesterday, I had a seizure at my reg. doc's. Now the here is the funny part. Before the seizure, I was talking to the ride sevice person of the crazyness of what is going on. So, I was a bit stress going into the app.. I told the desk, I might have a seizure, for I have aura's. I hit with the seizure, but I know how to get ready for it. After it was done & waiting for the ambulance. The wife, who is also a Doc. say's " If you are not feeling good, you shouldn't come in." At that time I couldn't tell her, way I went into the seizure & I was fine at home. It was like she had never read Any Thing About Epilepsy. Sorry, again :-(
 
The stigma of epilepsy is nearly worse than having E itself. People just make assumptions. For example, when I wound up in the ER last summer (the second time), the cop who came into my apartment saw the beer bottle collection I had (and hadn't yet found a home for, as I moved into that apartment less than a week before) and automatically assumed I was drunk and had blacked out.

You would think that law enforcement would be a bit more professional. I can understand the riots that happen in this country simple because of poor decision making, cliched stereotypes and lack of transparency about innocent people.
 
Hi HMalsbary, welcome to CWE!

So sorry to hear that you've been getting the raw end of the treatment deal. It can be tough to find a good doc, let alone a good neurologist, let alone a skilled epileptologist. I hope things get less stressful for you at home.
 
! ! ! ! Welcome to CWE ! ! ! !

HMalsbary,
It is all to common for medical professionals to to be totally oblivious as to what E is. They brag about how they have seen everything that could ever happen to somebody so they can handle any situation, but freeze when faced with having to deal with a person w/E.
The worst thing is when you have an appointment and you have to explain to them what E is! :ponder:

acshuman
 
Hi Malabary

EMTs & ER employees just think they've seen it all.
Last spring (2015) I was in the middle of a very strong Complex Partial, a short time after I had burned myself. I had even bitten my tongue. My husband took me to the Urgent Care center--they said to go to the ER. The nurse who met us at the door looked at me & actually said "She's not having a seizure."
 
Sabbo said:
EMTs & ER employees just think they've seen it all.
Last spring (2015) I was in the middle of a very strong Complex Partial, a short time after I had burned myself. I had even bitten my tongue. My husband took me to the Urgent Care center--they said to go to the ER. The nurse who met us at the door looked at me & actually said "She's not having a seizure."
Click to expand...

Did you go to the Urgent Care because of the Complex Partial or because of the burn? I don't see the need to go to the Urgent Care or ER for a CP unless one is injured or one has gone STATUS.

I once was cooking and had a CP, ending up burning my hand. I went to the Urgent Care the following day because of the burn, not because of the seizure. It turned out, I needed to go see a burn specialist and had surgery.

And several times EMTs were called after a CP because I wrecked my car. They treated me well and asked me if I had E. By that time I was out of the seizure and in the post-ictal state, so I couldn't speak yet, but could understand them. All I could do was nod my head and point to things.

So it is all how the medical persons are trained.
 
I agree with cint's comment that the treatment/care a person receives for a seizure is all about how a medical person is trained. This includes family doctors and even general neurologists. My experience has shown me that well-trained floor nurses are better at recognizing seizures than even a general neurologist! This is scary.
 
I had burned myself (2nd degree) about a week earlier. That burn occurred during a Complex Partial seizure.
 
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