execwife2002
New
- Messages
- 99
- Reaction score
- 0
- Points
- 0
Hello,
My son has had epilepsy for the past 7 years. Up until this past October his seizures were all nocturnal. Since switching to a new Dr. whom we love, there has been a lot of aggressive med changes along with some day seizures (break through seizures they called them ). The Dr. was able to switch the meds around until we found the right combination that works. So far for the past 2 1/2 months my son has been seizure free. He is praying (as we are too) that he is able to stay seizure free for the next 3 1/2 months. He will then be able to drive.He knows that he has no control over the seizures from happening. He is a freshman in college this year at the Community College and lives at home. The side effects to the meds have been very challenging as they have hinder his ability to process his school work weight gain etc. But the side effects out weigh the fact that he's been seizure free. He's on Topamax, Lyrica, and Depakote. He recently cut out caffeine, and beer (which he didn't drink much of it to begin with). I do notice that when he gets a cold, or sick he has a seizure. He has no idea when a seizure is going to happen. His close friends all know and so does his school/teachers. Depression has played a part in this as well. He gets very upset/frustrated/angry due to the fact that he has to rely on others for transportation. We of course will take him anywhere...but you know how it is when a 19 yr. old doesn't want to be dropped off by their parents.
Anyone else out there dealing with something similar to this situation??
My son has had epilepsy for the past 7 years. Up until this past October his seizures were all nocturnal. Since switching to a new Dr. whom we love, there has been a lot of aggressive med changes along with some day seizures (break through seizures they called them ). The Dr. was able to switch the meds around until we found the right combination that works. So far for the past 2 1/2 months my son has been seizure free. He is praying (as we are too) that he is able to stay seizure free for the next 3 1/2 months. He will then be able to drive.He knows that he has no control over the seizures from happening. He is a freshman in college this year at the Community College and lives at home. The side effects to the meds have been very challenging as they have hinder his ability to process his school work weight gain etc. But the side effects out weigh the fact that he's been seizure free. He's on Topamax, Lyrica, and Depakote. He recently cut out caffeine, and beer (which he didn't drink much of it to begin with). I do notice that when he gets a cold, or sick he has a seizure. He has no idea when a seizure is going to happen. His close friends all know and so does his school/teachers. Depression has played a part in this as well. He gets very upset/frustrated/angry due to the fact that he has to rely on others for transportation. We of course will take him anywhere...but you know how it is when a 19 yr. old doesn't want to be dropped off by their parents.
Anyone else out there dealing with something similar to this situation??