Post Seizure Experience...?

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annarosa

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HI

Im new to this, just wanted to hear if anyone has had any experiences with post-seizure vagueness, panics, fear, sense of disassociation and disconnectedness? I have JME and had my first seizure 2 weeks ago - my first one in 2 years - the next week at work I was erratic, disconnected, felt vague. I was OK after a week, but then yesterday and the previous day I had these strange types of panics....like a real fear set in, mimicking a panic attack. I got angry and lashed out, and felt paranoid I felt like I was going insane! I went to sleep and this mornign have woken up a little woozy, almost nauseas and as if I had a seizure a few days ago.

Has anyone had these expeirences? Tw days ago I felt I was fine. But then this has come along.

Its the first time in 15 years this has happened....usually I snap out of it a few days later....? Its freaking me out!
 
Welcome annarosa

The effects you described having after a seizure sound very typical of the post-ictal phase. I know I got all sorts of fatigue, confusion, forgetfulness & emotions running wild. I've had them last as long as a couple of days but never as long as a week.

Are you on any medication to help control your seizures & if so then what? It might be time to try a new med to lessen your post-ictal effects.

Also, since this is your first post I moved it to the foyer so that everyone can give you the official CWE welcome & share their experiences/suggestions.
 
Thanks so much! Yes I thought this may be it. To be honest after a week I thought it was all gone, although I had noticed I was moody and depressed, but the vagueness disappeared and felt totally in control. I worry this is an additional 'seizure' type activity! I am on Lamictal 150mgx2 a day but my blood tests I ran recently suggested I was at a safe dose....however, not sure whether or not it is 'therapeutic' enough. I have lost a lot of weight recently....? I saw my neurologist recently as I was (prior to this seizure) starting to get mild panic attacks and a sense of numbness....like auras....but it seemed that these were made so much worse becuase I then panicked....it was out of control! He said all is fine and I had an MRI and nothing was 'wrong'...need to have an EEG now. He also said it sounds relatively well controlled. Just a small point - when this happened yesterday, this sense of confusion, and lashing out at my husband, I wasn't doing anything strange and was behaving (my husband says) like my normal self. It was like a sudden mood swing and I was tired and exhausted in the lead up to Xmas (merry Xmas! I am in Australia...). I don't know. I think the worst thing is it becomes a vicious circle because I then worry, then start to have what is like a panic attack, freak out and have to hold my husbands hand and have horrible heart palpitations.

Sorry forn ranting on. Its such a relief to be part of this forum and just be able to bliurt out all my fears and anxities. My husband thinks I overreact!!!

Thanks again for the welcome and for responding. This is such a relief to me.
 
How long have you been on Lamictal? Is it possible you're feeling side-effects?

Also, a great place to rant & vent on here is in the padded room.
 
I noticed in your post that you have lost weight recently.

I am on dilantin and clonazepam and I too lose weight (39lbs) that caused my dilantin level to become toxic. I don't about Lamictal levels.

I was under the care of a Neur. who saw the weight loss not to mention I told him along with the panic attacks, anxiety, hysterical, irritable, well you name it.

I know all the diff. medic. works diff. and are differ. with each individual. I just wanted to share my experience in hopes that it could help you.
 
I can't remember what med I was on and what the dose was, this was a good many years ago (probably around 5 or 6), but all I did was sleep.

Basically the only time I got out of bed was to go to the bathroom. I wasn't eating at all, I think that my parents pretty much forced me to eat. I was having probably 3 or more seizures a week at that time, I'm having around 3 a month now.

I don't think that I was having any of the other problems that you are having though, except the after effects that I have normally after a seizure.

At the time that all I was doing was sleeping my dr changed some of my meds and I started doing much better after that. Like I said I've been on so many different meds and dosages though so I can't remember what I had been taking at the time.

Don't know if this helps or not.
 
Thanks everyone this is incredibly useful. I have a feeling this has something to do with my medication! I had a bit of a moment just then ...just where I was sitting with the family having dinner and my hands and feet went a bit numb and I felt a panic attack coming on.....had to leave the table. But OK now....have calmed a bit now.

hope everyone had a lovely Xmas, and thanks for the support!
 
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