I discover my daughter has Pws she had sz as child she 4ft 10'and over weight she 24 stone size 24 bmi 42 already had pulmonary embolism .She in residential home and I try get them exercise her.
All I read is American surpport service but fat lot good to me stuck in armpit of uk.I used contact a family charity but they only deal with kid not adults..If there Brit or at push Spain or France where self family help I be Gratefull.I have discovered there residential home in uk but need funding which well over 1000quid a week it will never happen with out help of someone in the know.and understands.
Really big push may send us to states see doctor spelist but be big push NHS funding and people would have every right to crusfy me when the not get decent insulin or cancer treatment.
My girl will be dead in five years unless get help now.
Pws caused by chromersone 15 also injury to brain hypothelmos because that what Pws do.She cannot register being full.So any Brits who know of it please contact me.most of these kids will start with nuro after that it goodbye get on with it
For any Brit suffering with child with conditions Lenexa for instance bundles of things they help with money that helps thses kids places to go respite
All I read is American surpport service but fat lot good to me stuck in armpit of uk.I used contact a family charity but they only deal with kid not adults..If there Brit or at push Spain or France where self family help I be Gratefull.I have discovered there residential home in uk but need funding which well over 1000quid a week it will never happen with out help of someone in the know.and understands.
Really big push may send us to states see doctor spelist but be big push NHS funding and people would have every right to crusfy me when the not get decent insulin or cancer treatment.
My girl will be dead in five years unless get help now.
Pws caused by chromersone 15 also injury to brain hypothelmos because that what Pws do.She cannot register being full.So any Brits who know of it please contact me.most of these kids will start with nuro after that it goodbye get on with it
For any Brit suffering with child with conditions Lenexa for instance bundles of things they help with money that helps thses kids places to go respite