RE: My latest MRI

[Literophile]

RE: My latest MRI

We figured out what's wrong with me, at least one part of it. There's no tumor, so yay. We're 99.99 percent sure I have a rare disorder called glucocortisoid resistance. http://www.wrongdiagnosis.com/g/glucocorticoid_resistance/intro.htm

Basically, my body resists cortisol, so my pituitary gland has to produce more than normal just to get enough. That tells my adrenals to function at a higher level, causing them to produce more ACTH and androgens and also causing the pituitary gland to swell so it can produce more cortisol. My p-gland is so swollen it's almost touching my left optic nerve. This is probably the source of my headaches.

Problem, though... My neuropathy and seizures occur on the left side, which means they originate on the RIGHT side of the brain, and the pituitary gland is swollen into the LEFT side of my brain. So I'm not sure that's what's causing that. then my question is--what is?

 

[Endless]

Literophile,

I am so happy that you FINALLY have a diagnosis. Yipppeeee! Finally, smart docs caught it! Sorry it has to be something so difficult, though. Have they suggested a course of treatment?

As for opposite side seizures... do they think that the swelling might be causing swelling that affects your whole brain?

<<<<hugs>>>>

 

[Literophile]

Yeah, I got a winner as far as endocrinologists go. :woot: Yeah, there's a medication called Dexamethasone that's basically a different type of cortisol, so then my p-gland doesn't have to work so hard to produce enough, and then the swelling goes down. That's the idea, anyway.

I asked him and he said he would have no idea. I'm going to try this medication for a month and if the headaches and whatnot don't stop, I'm going to go to a neuro. Maybe even an epi.

 

[Endless]

Whoooohoooo! :wave:

 

[Nakamova]

Nothing like finally getting a diagnosis, eh? That's so great! I hope the new med starts helping right away.

 

[Literophile]

Thanks! I do too. I just got them today, so I'll take one tonight and then tomorrow.... We shall see. ^_^

He said it may take up to a week to show results, though, but that's better than the other medication I was given for this. That one wouldn't start working for six months!

I'm so excited!

 

[Chel]

Progress - yay!

I love the "it may take up to a week to show results", as if that's waiting a long time, compared to your history and the other options.

Fingers crossed for you!

Chel

 

[Meetz1064]

Oh, that's

COOL BEANS!!! I'm sooooo happy for you! YAY!!!! :clap::clap::clap:

 

[morganomics]

I'm glad you've found a diagnosis after such a long time! I was diagnosed with temporal lobe epilepsy, some docs thought I might have endocrinological problems due to my fatigue, daytime sleepiness and cognitive problems. What are your symptoms like? Do you have problems with depression or anxiety?

 

[Literophile]

I'm glad you've found a diagnosis after such a long time! I was diagnosed with temporal lobe epilepsy, some docs thought I might have endocrinological problems due to my fatigue, daytime sleepiness and cognitive problems. What are your symptoms like? Do you have problems with depression or anxiety?

Yes! Fatigue, daytime sleepiness, depression, anxiety, headaches, excessive body hair , moodiness... Lots of different things. I posted a link in my first post to the symptoms of it. Well, actually, the link goes to an overview of it, but there's a small link in the box right above the overview that says "Symptoms". I had almost every one of the symptoms.

I hope you find out if you do have it, because it can get very bad rather quickly, if I'm any indicator. I went from having clinically insignificant swelling to such bad swelling that it was about the same size as if I'd had a macroadenoma on my pituitary gland in a little over a year. :O