AnniesDizzy
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Hi, I'm Annie...
I was diagnosed formally with epilepsy in October 2010. I've had symptoms going back to my childhood but didn't know it. Dejavu has been a persistent one in my life. I smell a burning smell that no one else can smell. So partial complex seizures. However, they combine with nocturnal tonic-clonic seizures. I've woke up with big bites on my tongue or the inside of my cheek bitten up like hamburger.
I also have trigeminal neuralgia which is very painful! I take gabapentin for it.
I have Chiari malformation 1. Which means that the lowest portion of my brain has been forced through the hole in the skull where the brainstem and spinalcord go. I had surgery in 2008 to decompress the brain so that the spinal fluid could circulate better. Before that surgery I was losing the ability to walk, type, my balance was basically gone, and I was in so much pain. I can feel my hands and feet now. but balance and I still don't get along.
I'm on my 4th med change for epilepsy. They are still not stopping the seizures. My last neurologist called it "intractable epilepsy". He ordered a monitored EEG, but I moved before I could get it.
So now I am waiting for my appointment with my new neurologist.
I've had three days of seizures. I feel like crap! My husband goes to work at 4:30 am and my stepdaughter has to get up at 6 am. My hubby called at 7:15 to see if I had gotten her off to school. I was so out of it! I asked who she was, then I asked what day it was.
She missed the bus and got to stay home today since I can't drive.
I hate this!
So how long do you guys usually feel like crap after a seizure?
Annie
I was diagnosed formally with epilepsy in October 2010. I've had symptoms going back to my childhood but didn't know it. Dejavu has been a persistent one in my life. I smell a burning smell that no one else can smell. So partial complex seizures. However, they combine with nocturnal tonic-clonic seizures. I've woke up with big bites on my tongue or the inside of my cheek bitten up like hamburger.
I also have trigeminal neuralgia which is very painful! I take gabapentin for it.
I have Chiari malformation 1. Which means that the lowest portion of my brain has been forced through the hole in the skull where the brainstem and spinalcord go. I had surgery in 2008 to decompress the brain so that the spinal fluid could circulate better. Before that surgery I was losing the ability to walk, type, my balance was basically gone, and I was in so much pain. I can feel my hands and feet now. but balance and I still don't get along.
I'm on my 4th med change for epilepsy. They are still not stopping the seizures. My last neurologist called it "intractable epilepsy". He ordered a monitored EEG, but I moved before I could get it.
So now I am waiting for my appointment with my new neurologist.
I've had three days of seizures. I feel like crap! My husband goes to work at 4:30 am and my stepdaughter has to get up at 6 am. My hubby called at 7:15 to see if I had gotten her off to school. I was so out of it! I asked who she was, then I asked what day it was.
She missed the bus and got to stay home today since I can't drive.I hate this!
So how long do you guys usually feel like crap after a seizure?
Annie
We got home from the hospital at 6am Sat morning. I washed her up and helped her get into bed. She was out till about 3pm. She got up and tried to eat something then went back to bed. She didnt get back up until 8:30am the next day. She was still sore but up for most of the day and seemed to be ok for the most part.
