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Aria's dada

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Hi My little girl Aria was very sick she spent most of the first three months of her life in the hospital do to recurring meningitis now at nine months wich is an amazing blessing her nero believes she is having absence seizures and wants to put her on keppra her mother and i are very scared because we do not want to lose our beautiful girl she is a wonderfuly happy baby and im scared the meds will change her in some way. We are strongly debating waiting to start her meds
 
Hi Aria's dada,
My prayers are with you in the care of your child. making this tough decision, as well as future decisions.
 
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Hello, I am very new here as well and just as scared. My son Braydon at 10 out of NO WHERE had a tonic clonic seizure on a plyaground and within 5 days was diagnosed epileptic. We are now on 1000mg of Keppra a day. I was very very scared it would "change" his attitude and personality. Luckily there has been nothing and we have been on the meds a little over two weeks. However the Dr told me it could still happen and if it does was will find another med to try. Just remember if there are several meds out there and if you notice a change in your daughter call your doctor!! Hope this helps and good luck :)
 
Aria's dada said:
Hi My little girl Aria was very sick she spent most of the first three months of her life in the hospital do to recurring meningitis now at nine months wich is an amazing blessing her nero believes she is having absence seizures and wants to put her on keppra her mother and i are very scared because we do not want to lose our beautiful girl she is a wonderfuly happy baby and im scared the meds will change her in some way. We are strongly debating waiting to start her meds
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(((HUGS))) to you, so sorry to hear what you're going through.
While it's true however that AEDs do have side effects, it is a simpler decision than sometimes realized, and you basically summed it up yourself. Though uncommon, epilepsy can be fatal, and of course taking any risk of losing her obviously isn't an option. I know you're scared but if there's any way to keep a simple perspective on it it will help loads. Trying the recommended med is a starting point - if it causes unacceptable side effects or changes her in some way as you say, demand they try something else. They can't force you to do anything or stay on a drug. And if they try, dump them and get another neuro.
It does become a bit of trial and error but when you find one that is working for her seizures and doesn't have detrimental side effects (you never know, it could be the first one!), then you can breathe knowing you've stuck with the process and that your girl is on the right track.
I know she's so little and it must be terrifying, but waiting to put her on meds and basically crossing fingers that more seizures don't harm her is a real gamble. It may help too to seek a 2nd opinion now before making any big decisions, that way you've got input from more than one neuro.
BTW... has she actually been diagnosed with epilepsy or is going with keppra just the doc's starting point? I'd be interested to hear. All the best to you and your wife, and know we're all here if you need to talk.
 
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