Hello everyone,
I just found this site and I look forward to reading and posting about our common condition.
I have complex partial seizures and have had them since I was 12 or so. I didn't find out the cause of the seizures until I was 27 when a dermatologist put two and two together, did a biopsy and found out I had Tuberousclerosis. I have been on every drug on the market and I still had/have at least two complex partial seizures a week on average.
My seizures are definitely tied to sleep or lack thereof. I had one earlier tonight because I haven't slept well lately. I have completed all my classes for a doctoral degree in education and now need to finalize a dissertation topic and I feel the pressure; the lack of sleep and stress are often the causes of seizures for me.
Anyway, it is also stressful because I am going to need a new job and never driving before and never knowing when I might have a seizure limits my opportunities.
I don't and have never let epilepsy define me and I owe that to my dad who never let me use it as an excuse and I have never seen it to be that big a deal. I blackout, go through the refractory period, shake it off and move on. I have never driven a car and most likely never will. This causes me to walk and ride a bike 12 months of the year, even in the freezing cold winters. It builds character:mrt::twocents:.
Anyway, I have achieved a lot and have more to do. I hope I learn from all of you and I hope I have something to offer you as well in terms of my experience as a person with epilepsy. I don't let it define me and don't let it define who you are either. We are much more then how our brain waves hiccup once in awhile. :woot:
I just found this site and I look forward to reading and posting about our common condition.
I have complex partial seizures and have had them since I was 12 or so. I didn't find out the cause of the seizures until I was 27 when a dermatologist put two and two together, did a biopsy and found out I had Tuberousclerosis. I have been on every drug on the market and I still had/have at least two complex partial seizures a week on average.
My seizures are definitely tied to sleep or lack thereof. I had one earlier tonight because I haven't slept well lately. I have completed all my classes for a doctoral degree in education and now need to finalize a dissertation topic and I feel the pressure; the lack of sleep and stress are often the causes of seizures for me.
Anyway, it is also stressful because I am going to need a new job and never driving before and never knowing when I might have a seizure limits my opportunities.
I don't and have never let epilepsy define me and I owe that to my dad who never let me use it as an excuse and I have never seen it to be that big a deal. I blackout, go through the refractory period, shake it off and move on. I have never driven a car and most likely never will. This causes me to walk and ride a bike 12 months of the year, even in the freezing cold winters. It builds character:mrt::twocents:.
Anyway, I have achieved a lot and have more to do. I hope I learn from all of you and I hope I have something to offer you as well in terms of my experience as a person with epilepsy. I don't let it define me and don't let it define who you are either. We are much more then how our brain waves hiccup once in awhile. :woot:
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