Should I get a test for Temporal Lobe Epilepsy?

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ht93

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I am a healthy 21 year old male. I have had several very intense seizure experiences that sound very similar to the effects of TLE (Temporal Lobe Epilepsy). There have been at least three incidences of serious head trauma in my childhood that could have caused this activity, one of which happened when I was an infant, resulting in a concussion.

Since I can remember I have expressed many of the traits of the temporal lobe epilepsy personality, such as slight hyposexuality, easily aggressive and angered, strong sense of personal destiny, slight paranoia, a hard time adjusting to social cues, difficulty choosing words, and extreme religiosity and spirituality. The interest in religion is the most pronounced, and has led me to spend thousands of hours studying different religions, practicing meditation, and obsessing over the philosophical aspects of existence. I can even remember in kindergarten, consantly wondering if existence is real, if "I" am this body or some other essence, if reality is just a dream or not, etc...

When I was a young child, I would experience out of body experiences every night. At least every coupld of weeks, I would have events in which my consciousness was "enhanced," so to speak - for up to 15 minutes at a time, my mind would quiet and my senses would be incredibly acute. This still occurs at least weekly. I have since read that these can be auras or even small seizures.

When I was 16, I experienced an event which is very similar to the classic spiritual seizures of TLE. Suddenly, I had one of these moments in which my perception was enhanced, but this time by a thousandfold - I lost consciousness of the limits of my physical body and experienced a feeling of nirvana. This lasted about 25-30 minutes. About 11 months later, the same thing occured - a feeling of nirvana that lasted this time about an hour, brought on by a feeling of intense anger.

About a year later, at the age of 18, I experienced the most frightening and intense of these seizures yet. Up until this point, I had no idea that I might be epileptic. I thought I was just very spiritual or something. I was meditating, and as soon as I got up and opened my eyes I felt my body start to shake. The next 75 minutes or so, my body was caught in uncontrollable tremors. At times I could get up and walk a few steps at a time across the house, but after that I would have to lie down again and experience the convulsions. The left side of my face was contorting and I could not control it, as well as my arms. The entire time, I literally felt as if a giant hand, perhaps the hand of God, was reaching down and shaking my head. It was an intensly beautiful experience and a terrifying one at the same time. The spiritual aspect of this event brought great bliss and understanding, but the convulsions of my body were scarier than the benefits of a spiritual experience.

The other thing I must note is that I began smoking marijuana daily soon after the second "nirvana-type" seizure (that happened when I was 17). I didn't know why, but I just felt an urge to do so. When the event described in the above paragraph occurred (when I was 18 years old), I was taking a break from smoking marijuana for the first time since the previous event. The first thing I did as soon as I could, when this seizure was occurring, was to smoke marijuana, and this finally brought the tremors down. Since that day, about 3 years ago, I have smoked marijuana daily, in small amounts 1-2 times a day. I know that marijuana contains at least 6 anticonvulsant chemicals, and that many people use it to treat epilepsy. While it may not be the best treatment, I think it is noteworthy that whenever I have been using marijuana, I have experienced no seizure activity. The most I experience is that, every week or two, I experience the aformentioned state of enhanced perception for 5-30 minutes at a time.

I know this has been an intricate and very long discussion of my seizure activity. But I really want to know, should I go get myself tested for epilepsy? Is it possible that I was having seizures but am not epileptic? Also, is there a possibility that I am simply a very spiritual person and not epileptic?
 
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Welcome ht93

I don't think being spiritual can cause what you described as convulsions and everything else you've described tends to describe seizures I've had at some point in time.

My question to you is why would you not want to get tested? It just seems like the thing to do if you're experiencing all those things. Also, remember that epilepsy is just a definition for someone who has regular seizures regardless of the cause, so I don't think you can have them regularly & not be epileptic.

As for marijuana, I'm not a big advocate but to my knowledge the only thing that it has that acts as an anti-convulsant is the THC because of how it slows the firing of neurons in the brain. The problem being that when one uses marijuana as their anti-convulsant they become much more likely to have seizures when stopping or slowing their intake.

Also be aware that something that does happen during a seizure is the total loss of time. You talked about the 1/2 hour & 1 hour experiences, that reminded me of how long I thought my seizures were when I was younger. I thought they were an hour or 2 but they were usually no more than 45 seconds.

Well make yourself at home & check out all the rooms here. The library has some great reference material that might help you out.

Also, I moved your post to the foyer just so that everyone can welcome you here. Hope you don't mind.
 
Awesome, thank you so much. I have read that marijuana acts as an anti-convulsant, and works especially well for TLE. I found a chart online that shows the different chemicals in marijuana, many of which are antiepileptics. It won't let me post links yet on this forum since I just registered, so search "grandpa's pot farm + marijuana compounds" or something to find it yourself.

The loss of perception of time makes sense - I was just guessing at those times. In reality, I had no idea and still question to this day how long seizures last.

I would like to get tested, but at this point its a matter of money. Im a broke student trying to put my way through college. Are there any options for inexpensive or free testing?
 
HT,

Welcome to CWE!

Seeing a neurologist might be a good idea. They'll do a CT Scan, MRI, and an EEG to try to pin down what's happening. It's important to rule out some of the more serious problems. Really, the symptoms you describe could be anything. It takes a good neurologist to sort it all out.

Don't go by your personality (like hyper religousness) - go by the physical symptoms. Again, Nirvana, shaking, sensory acuity could be a lot of different things.

On the topic of Marijuana... there is mixed opinions on that one. The research pretty much says it might help some, and it causes seizures or makes them worse in others. The marijuana could actually be causing your problems, not helping them. Marijuana can also cause the very symptoms you are describing.

Look here for more information on seizure treatment and Marijuana. The studies that were their sources are cited at the end of the article. To find the marijuana-specific information, search on it (in the top toolbar.... Edit-Find on this page...)
http://pcs.hmc.washington.edu/Epilepsy/EpiInfo/CAM.html

Hope this helps.
 
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