son has seizures

[painter]

hi my son had his first majior fit july 2008 age 4.5. he then didnt have any problems till christmas. we started to notice partial and ticks. he had an eeg in feb 2009 and showed signs of epilepsy. he was put on tegatol this actually helped with his bed wetting.

his medication has had to be upped a numberr of times each time the side affects mean hes more punch drunk and finds the easyest of tasks a chore. since he could talk he has told use he has headaches these have been getting worse so much so that he is unable to function at all.

the drs kept saying it could be stress from school as there has been trouble with some unkind boys and teachers.!!! altough he has been at school for 90% of the year he was unable to function to the class level. we are sending him to s villag school come september in the hope that the stress will reduce and he will be more relaxed and able to learn. ( if we get medication right before that)

after an MRI it showed he has an arachioid cyst 2cm x 3cm front temperol and a scare left temperol lobe.

as the medication is not stopping his seizures and is making his life much more limited we are looking for alternatives. we are hoping to see a neurosurgan to see if the cyst was drained could this "cure" all my lovley
boys other problems.

he will be 6 in sept and i want as we all do for our children to have a happy and productive life

 

[Loudmouth]

Hope you are coping Ok. The medication has stopped my daughters' bed wetting also - It was probably part of the sz. my daughter is 11 1/2. what educational difficulties is your son having? My daughter is working at 3 1/2 yrs behind her peer group in english and 5 yrs behind her peer group in maths. It's a big worry because in september she moves up to secondary school. It's awful seeing your child have to go through this. (((hugs)))

 

[RobinN]

My daughter was speech delayed, but caught up and was removed from speech therapy after the 5th grade. She also started having some bladder issues about a year before her first seizure. Not at night, usually when excited and laughing.. which she likes to do a lot.
I found that after neurofeedback this issue has resolved itself. Neurofeedback also helped her cognitive abilities.

For the record she has a heterotopia on her right frontal lobe, which two neurologists pointed to as the reason she was having seizures. Another neuro team said it was inconsequencial. I would definitely monitor a cyst.

 

[painter]

scjhool ability

we are not sure how my son is with in a chool setting thats compy.

people would comment he was the oldest in the class but behaved like the youngest. we were unconcirned byy this as he was just four when they said this and blimey they are still babies at that age.

in reception class he was in the lowest group with the youngest kids and challanging kids. this was hard for him as his concentration is limmited when on the medication and he had little interest in writing.

the "brighter" kids would push him around and hurt him. i dont allow my children to watch or play with toys etc that are not age sutable. these kids are and he didnt understand what they weere doing.

come sept he will be in a new school a class of apro 20 with 3 teachers.,

im not looking at special schools but i do feel that he has lost out on 2 scholl years due to the affects of the medication and the headaches from the cyst. we will get him assessd once term begins and see if he requires extra support or being with kinder kids and smaller class may give him the confidence.

One problem or it may be a pluss is my daughter will also be in the same class as it is two school years together.

i have my son nearly 6 daughter nearly 5 and son just one.

things are crazy enough with out all the worry of brain surgery etc.

 

[RobinN]

I can imagine how worried you are. There is enough to care about without a child being sick. I am sorry that you are having to deal with this when your children are so young.

It sounds like you have found a good school. Kids are resilient and I am sure he will catch up given some time.