Hi...just found this site ...my 24 yr old son has sz ( i dont even like to spell it) and wants friends so badly...he doesnt have much of a life since he has a sz or more every couple of wks....i have never believed in medicine although he was on it a couple of times, but it didnt help and had side effects we didnt like...if it had helped we would have dealt with the effects, but it didnt..so that is the main thing, finding him people to communicate with...it is understandable, but people are so afraid of the condition that it takes someone special to try to get close to...you all seem so supportive and nice that i thought maybe you would have some ideas.....he doesnt really want to be in a support group for epilepsy because he doesnt want to focus on it but at least those people would understand .... he always wants me to let him go places alone, but i dont feel comfortable with that cuz he could get hurt and/or end up in the hospital...sigh....i am trying different natural therapies and always looking for new ones..money is an object though so we are limited in that area...well, more later
son with sz
- Thread starter zc3
- Start date
Welcome to the Coping With Epilepsy Forums
Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.
Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!
skillefer
New
- Messages
- 2,339
- Reaction score
- 0
- Points
- 0
Hi zc! Welcome to CWE. 
I'm sorry to hear about your son. Just remember that natural treatments, as well as meds need time to work. For meds it can take a month before you see results, and then only if the meds are at the right level. If not, you might think that the med isn't working or only partially working. Also, meds can cause side effects, and some of these, like lethargy are worst when just starting meds. As for natural therapies, they work best only when rigidly adhered to.
As for friends...hmmm....I moved out to the west coast all by myself. Prior to that, I had a job in Iowa teaching. When I went to Iowa, I made friends with my neighbors as well as my coworkers. When I moved out to Cali, I made friends by hanging out at a mom and pop coffee shop. Ok, not exactly the most exciting place to hang out, but you do meet interesting people. Has you son considered going to a junior college? That would be a great place to hang out with others his own age, to learn about things he's interested in, as well as start being more independent.
As much as you want to protect him, you need to let him be a bit more independent and go places alone. He's 24. He's a man. Just think back. What were you doing at his age? Yes, your son has seizures. But it's not a crippler. It's not the end of his dreams. Wouldn't you rather have him leave the house with your blessing, and knowing where he is, then for him to get so badly frustrated that he sneaks out? Try letting him make some more decisions for himself. I'm not saying don't take precautions...have him get a medic alert bracelet and give him a prepaid cell phone so that if anything does happen, you can be called. Ask him to always let you know where he's going be. The cell will let you know where he is, and if you goet worried because he's been out for an excessively long time, it allows you to call and check on him.
I'm sorry to hear about your son. Just remember that natural treatments, as well as meds need time to work. For meds it can take a month before you see results, and then only if the meds are at the right level. If not, you might think that the med isn't working or only partially working. Also, meds can cause side effects, and some of these, like lethargy are worst when just starting meds. As for natural therapies, they work best only when rigidly adhered to. As for friends...hmmm....I moved out to the west coast all by myself. Prior to that, I had a job in Iowa teaching. When I went to Iowa, I made friends with my neighbors as well as my coworkers. When I moved out to Cali, I made friends by hanging out at a mom and pop coffee shop. Ok, not exactly the most exciting place to hang out, but you do meet interesting people. Has you son considered going to a junior college? That would be a great place to hang out with others his own age, to learn about things he's interested in, as well as start being more independent.
As much as you want to protect him, you need to let him be a bit more independent and go places alone. He's 24. He's a man. Just think back. What were you doing at his age? Yes, your son has seizures. But it's not a crippler. It's not the end of his dreams. Wouldn't you rather have him leave the house with your blessing, and knowing where he is, then for him to get so badly frustrated that he sneaks out? Try letting him make some more decisions for himself. I'm not saying don't take precautions...have him get a medic alert bracelet and give him a prepaid cell phone so that if anything does happen, you can be called. Ask him to always let you know where he's going be. The cell will let you know where he is, and if you goet worried because he's been out for an excessively long time, it allows you to call and check on him.
thanks skillefer...it is just that when these things happen they are so sudden and he has fallen and i worry about him falling on the street...i know it is a fine line between caring and suffocating but his brothers and sisters feel the same way--that he cant just go off on his own................well, thanks again
skillefer
New
- Messages
- 2,339
- Reaction score
- 0
- Points
- 0
*chuckle* Know how that feels....I have grandmals... Which means I fall and froth and convulse quite nicely. I had one while taking a walk down the side of my street when I was growing up. But I ended up fine. Have you considered trying to get your son a service dog? They have ones that are trained to help people when they have seizures by getting help.
Which means I fall and froth and convulse quite nicely. I had one while taking a walk down the side of my street when I was growing up. But I ended up fine. Have you considered trying to get your son a service dog? They have ones that are trained to help people when they have seizures by getting help.
LivingFruity
New
- Messages
- 195
- Reaction score
- 0
- Points
- 0
Hi Zc3 :hello: Welcome to CWE! I totally understand wanting to avoid the meds and the side effects that come along with them. There's a lot of information here that may provide some natural alternatives that you haven't tried yet.
Have you ever read the book Treating Epilepsy Naturally? It's an excellent book written by a woman who dealt with seizures and meds for years until she was around your son's age. She then wanted something better for herself and did some research into alternative healing methods. She wrote this book about her journey and shared many, many options that are available to us. You should check it out.
Have you ever read the book Treating Epilepsy Naturally? It's an excellent book written by a woman who dealt with seizures and meds for years until she was around your son's age. She then wanted something better for herself and did some research into alternative healing methods. She wrote this book about her journey and shared many, many options that are available to us. You should check it out.
- Messages
- 2,241
- Reaction score
- 0
- Points
- 0
Zc3,
I've had epilepsy all my life and never been controlled.
I've lived on my own before I got married several time My mother never stopped me from going off with friends growing up, or to family reunions were i was more likely have seizures.Anything can bring on my seizures and I take the bus and subway places and had seizures on them.If I have a sz that's life. I've been on 19 different medications had brain surgery now have the VNS.:twocents:
I have granmal seizures your son has a life he needs get out of the house he can wear a helmet also.
There's also the VNS as a possibility helps his sz's it cut mine down.:agree:
Epilepsy isn't the end of the world.
Belinda
I've had epilepsy all my life and never been controlled.
I've lived on my own before I got married several time My mother never stopped me from going off with friends growing up, or to family reunions were i was more likely have seizures.Anything can bring on my seizures and I take the bus and subway places and had seizures on them.If I have a sz that's life. I've been on 19 different medications had brain surgery now have the VNS.:twocents:
I have granmal seizures your son has a life he needs get out of the house he can wear a helmet also.
There's also the VNS as a possibility helps his sz's it cut mine down.:agree:
Epilepsy isn't the end of the world.
Belinda
- Messages
- 7,657
- Reaction score
- 1,008
- Points
- 278
Hi zc3, welcome to the forum. :hello:
In addition to Patricia Murphy's book, you might also consider [ame]Epilepsy - A New Approach: What medicine can do, what you can do for yourself. Have a look at the http://www.coping-with-epilepsy.com/forums/f22/proactive-prescription-epilepsy-1254/][/ame] thread for some other ideas.
Also the chart linked in my signature might give you some food for thought.
In addition to Patricia Murphy's book, you might also consider [ame]Epilepsy - A New Approach: What medicine can do, what you can do for yourself. Have a look at the http://www.coping-with-epilepsy.com/forums/f22/proactive-prescription-epilepsy-1254/][/ame] thread for some other ideas.
Also the chart linked in my signature might give you some food for thought.
This post may contain affiliate links for which Coping With Epilepsy Forums may be compensated.