stopping the onset of a seizure

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naenae

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has anyone else found that the simple thing of talking may delay in the least a seizure i have had a friend tell me it works for their familly and i have at some points had it work for me i get very quite before a tonic clonic and so friends will start telling me stories and sometimes it works i dont excatly know why but wonder if others find the same
 
Hi naenae, welcome to CWE!

A few people have been able to be "distracted" out of having a seizure, possibly because focusing and paying close attention to something can generate different brainwaves than the kind that are vulnerable to seizures. Sometimes certain breathing exercises or acupressure moves can help too, and I read of one instance where someone was able to stop/prevent a seizure by inhaling a particular scent.

There's an alternative epilepsy treatment called neurofeedback that takes advantage of this aspect of the brain to respond and change. It trains the person to strengthen the brain's "normal" brainwaves. You can read more about it here: http://www.coping-with-epilepsy.com/forums/f22/eeg-neurofeedback-501/

Best,
Nakamova
 
oh wow thankyou so much i have tried for so long to come to an understanding and how to control this as much as i can well no not control it but live despite of it and after this long i have only just found a few new things that may help this being one of them but google doesnt want to be my friend and show me why or how this works so glad i have found this forum thankyou
 
Hi
you may be right. I was going in to a complex partial and my friend yelled out my name and I was good after that. not sure if it would have gone in a tonic clonic. But maybe it did help? I get quite too, even though Im aware of whats going on.
 
There is a book out there about this very subject, written by a women who has done massive research on it and suffered years of seizures herself. You can get it from Amazon. It is: "Epilepsy: A New Approach" ~by Adrienne Richard, Joel Reiter, M.D.
 
thanks guys yea im pretty sure the talking is helping and i guess i am just going with it keeps the mind alive im playing with music now too seeing if music would do the same thing like singing etc have no idea if it would but what the hey worth a try i will look up for that book too
 
Not sure you can stop it after it starts, i've tried breathing heavily, being motionless, crawling into the fetal position, nothing seemed to work for me. The first thing it affects for me is my speech. One time my new boss came to look at the place where i work and i was explaining to him what a particular machine does and then for the life of me i couldn't get the words out i wanted. It was like i had a mouth full of popcorn and glue. :) I finally sat down and the rest of the seizures i experience started to happen. Luckily it was a smaller one, but still had to fess up to the fact that I'm epileptic and sometimes these things happen. But that was the first time i had notice my speech being affected, since i'm normally alone and not talking to anyone at the onset.

Cheers,
Zolt
 
Ive only had one tonic clonic and some other symptoms, but in the 2 weeks since the t/c ive had some pretty strong dizzy headachy spells that almost start to feel like the aura i got but i used to spearfish and learnt some good breathing techniques which so far seem to be holding off the dizziness. They are the methods used by freedivers to lower blood levels of co and increase blood oxygen and involve steady full breathing from the diaphram with a focus on a full exhale to release the co.
 
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