stressed out father

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golfhead

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hi all im a new memeber..my 17yr. old daughter has ep. and has been taking keppra for about 2yrs. she stills has grand mals from time 2 time..then the dr. ups her meds and she good for awhile but last night she had one and early this moring another...we have anther dr. appt. this week but i think hes just going 2 up meds agin? i live in ohio and im hearing that the clevland clinic is very good for this kind of stuff?
 
hi bud, my epilepcy drove my familey nuts. keppra and my fits drove every 1 (including me) mad! my docs are still working on my meds, was taken off keppra because it caused me deppression. being on this site is a great move because it will help you get the vew of people who have the same problems as you.

for me the best thing my famley have done for me is be there for me, through hospital visits ect. sounds ovious but if you wake up from a fit with some one there who loves you... it makes it easyer... beleve me your daughter will know this.
 
Hi golfhead, welcome!

It can take a while to find the right med/dosage combo for seizure control. And with a teenager's crazy metabolism it can be even tougher to figure things out. If the keppra isn't working for your daughter, and/or the side effects are problematic, there are other meds to try. It can also be helpful for her to keep a seizure diary -- keeping track of not only seizures but other details -- diet/nutrition, sleep, activities, hormones -- can find any patterns and triggers. She could be sensitive to something her diet (like gluten), or environment (like flashing lights). Some people find that there is a connection to fluctuating estrogen levels. The number one seizure trigger is fatigue, so if your daughter can be proactive about her overall health, that may help as well.

Best,
Nakamova
 
another thing your daughter needs to keep an eye on in the fucture is alcohole, tobaco and any other forgen chemicals that are not natural to the body, these chemicals can have an effect on how the meds work
 
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