Tegratol 400. Good or bad news

[cwm686]

I have asked this question before. I put the wrong title on it.
What i am hoping for, is people with good results from tegratol 400. I have just been put on epilepsy meds, for the first time ever. All commentsonder: are welcome. I have frontal lobe epilepsy. My nuroligest seems pretty shure this will fix me. Please let me know what i might expect.

 

[epileric]

I don't think you can say any drug or any dosage of a drug is good or bad. Everybody reacts differently to different drugs & different doses that I don't think one can make that kind of generalization.

I"m on 800mg of tegretol twice a day. I still have an average of 4 or 5 partial seizures a week. Is that bad? However it does stop me from having tonic/clonic seizures, is that good?

Realize that is just me. I'm sure everyone reacts differently.

 

[RobinN]

check out:
www.askapatient.com

 

[brain]

:hello:

Welcome to CWE!

Everyone reacts to Anti-Epileptic Drugs differently,
so what works and did not work for others or the
reactions / side effects if applies on others, does not
necessarily mean it will affect / effect you.

As I have posted numerous times:

We are all unique and are like a snowflake, no
two of us are alike.

You can imagine the tremendous load a Neurologist
or Epileptologist must carry; for all medication(s)
are dealt with in a "trial and error" basis due to the
very nature that I had posted above in bold
emphasis. All of our chemistry and hematology
and so on ---> our make up in our bodies are all
differing from everyone; just to show how vast
and great the differences lies.

While from my own experience; Tegretol is on the
allergy list for me, but it does not necessarily mean
anything to you ---> for many have benefited from
Tegretol and Tegretol XR (or Tegretol Retard as it
is known in International Countries).

Good Luck and remember, it takes time, and it is
a slow process ---> always keep in mind; slow and
easy is the way to go (titration) and likewise;
everything is done in trial and error. It does take
a lot of patience, which can wear thin sometimes;
but hang in there!

:tup:

 

[BoudicaWV]

Reply to Tegretol

Now my experience with tegretol XR which is time release worked great for me at first than i got what the doctors called immune so I had to increase my dosage I am now at maxium level allowed 1600 mg. Does it help yes i don't have seizures when I up n awake if i feel one coming on i take a phenobarbitol or a clonazapam or me n my husband have this relaxation techinque taught to us by a seizure specialist. I would die without my tegretol just make sure u get your liver levels checked, and you really shouldn't drink while taking this medicine i had 1/2 glass of wine for new years well needless to say i paid the price 6 tonic-clonic seizures that night. the best advice is get a notebook keep detailed information on how the meds make u feel if u feel they are working so forth and so on. My seizures are located in the front temporal lobe too, stinks huh. well I wish you the best of luck and if u every need to chat just hit me on the board i'm hear every day but just now getting the use of my hands back. GOOD LUCK N GOD BLESS YOU. YOU'LL BE IN OUR FAMILY PRAYERS. SINCERELY KIM

 

[LuvMyTwins]

I've been taking Tegretol XR for years. With all the changes they've made to "better" drugs, the Tegretol has been the one that has kept me virtually seizure free (1 every 2 years). Yet, we are all different. I agree with keeping a journal, have a strong change in diet (gluten/soy/dairy free) and check your levels as Tegretol can be a pain.---LMT