This is all new to us
- Thread starter sabina
- Start date
Welcome to the Coping With Epilepsy Forums
Welcome to the Coping With Epilepsy forums - a peer support community for folks dealing (directly or indirectly) with seizure disorders. You can visit the forum page to see the list of forum nodes (categories/rooms) for topics.
Please have a look around and if you like what you see, please consider registering an account and joining the discussions. When you register an account and log in, you may enjoy additional benefits including no ads, access to members only (ie. private) forum nodes and more. Registering an account is free - you have nothing to lose!
gr33nr0se
New
- Messages
- 369
- Reaction score
- 0
- Points
- 0
im 16 and i had my first seizure in september and i've had many since then. i was recently diagnosed with focal and generalized epilepsy and there is no epilepsy in my family. Based on what my neurologist has said, it is not uncommon and it is very possible that her epilepsy wasn't seen because she didnt have it until then. thats what it is with me anyway. good luck
olivia
olivia
- Messages
- 17,355
- Reaction score
- 756
- Points
- 263
Since epilepsy has many causes -- known and unknown -- it shows up in very individualized ways, and can appear at any age. It can result from a head injury. Or from an infection. Or from a hormonal fluctuation. Or a genetic predisposition. Or a nutritional imbalance.
I didn't have my first seizures until I was 35. I may have had a lower seizure threshold because of a head injury when I was 5, but I can only guess at why it took 30 years before I went over that threshold.
I didn't have my first seizures until I was 35. I may have had a lower seizure threshold because of a head injury when I was 5, but I can only guess at why it took 30 years before I went over that threshold.
sah313
New
- Messages
- 20
- Reaction score
- 0
- Points
- 0
Hi Sabina,
I was only diagnosed 2 years ago (at 24) with simple partial epilepsy in 3 lobes on the left side of my brain. I sat down with my mother to try and figure out how long I must have had epilepsy for without knowing it, it turns out it started when i was about 7. My mother remembers a huge change in my personality and I went to a number of hospital appointments at the time as i kept seeing things, something which i was told i would just grow out of. So we spent 17 years never knowing about it and my change in behaviour and seizures were all put down to the fact i was an awkward child!
Its easy not to notice something until it hits you in the face. Its just great you didnt have to wait even longer to find out. Good luck!
I was only diagnosed 2 years ago (at 24) with simple partial epilepsy in 3 lobes on the left side of my brain. I sat down with my mother to try and figure out how long I must have had epilepsy for without knowing it, it turns out it started when i was about 7. My mother remembers a huge change in my personality and I went to a number of hospital appointments at the time as i kept seeing things, something which i was told i would just grow out of. So we spent 17 years never knowing about it and my change in behaviour and seizures were all put down to the fact i was an awkward child!
Its easy not to notice something until it hits you in the face. Its just great you didnt have to wait even longer to find out. Good luck!