motheroftwins
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I am new to this site. I have 17 year old twins both diagnosed with epilepsy. One in 2010 and one just within the last month. The first one to have been diagnosed is really struggling with controlling his seizures. He had one this morning as he was about to write an exam, and last week he had a grand mal one at a restaurant.
To say we are stressed, well that is to say the least. I read another post of the mother who talked about not sleeping at night, wanting to sleep in 19 year old son's room as she is so afraid, I can so relate to these things. Every noise I hear I wonder if it is one of them having a seizure. I don't think anyone realizes how difficult it is for a parent unless you have experienced it.
My son is on his fourth medication since 2010 and his seizures are more frequent, not less. So concerned about him being one of the percentage who are drug resistant.
Have been off work for the last month, due to stress and both kids needing me and now due to go back and just don't know how I can when they need me with his seizures being so uncontrolled.
How have other mother's got beyond these points?
To say we are stressed, well that is to say the least. I read another post of the mother who talked about not sleeping at night, wanting to sleep in 19 year old son's room as she is so afraid, I can so relate to these things. Every noise I hear I wonder if it is one of them having a seizure. I don't think anyone realizes how difficult it is for a parent unless you have experienced it.
My son is on his fourth medication since 2010 and his seizures are more frequent, not less. So concerned about him being one of the percentage who are drug resistant.
Have been off work for the last month, due to stress and both kids needing me and now due to go back and just don't know how I can when they need me with his seizures being so uncontrolled.
How have other mother's got beyond these points?