waiting...and changes...

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ramona11

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Still waiting to hear from the EEG... And things keep changing every day. They just keep getting more and more strange... I was having the "episodes" every 15 minutes this morning and then my head and hands just kept shaking and would not stop. I thought it might be my dystonia, so I checked my neurostimulators - turned them on and off and changed the settings, but nothing I did changed the head and hand shaking. I took some Valium and laid down and it finally stopped after a while. Later, my mouth started opening and closing and I could not stop it. It seemed to precede an episode and then subside. The head and hands started shaking again in the afternoon, but stopped on their own in a few minutes. Then, this evening, they did the same thing, but just for a few minutes again, after supper. We went to Michael's and on the way home my mouth started up again, then I had an episode, then my head and hands started shaking AGAIN. My muscles are just worn out by now... It stopped in just a few minutes, though - probably less than five. These are not like tremors - it is harder shaking than that. What in the WORLD can be going on?! I have been through a lot neurologically, but this has me stumped. I am assuming that since I have not heard from the EEG, it MUST not be anything serious (the EEG was done yesterday). The shaking sounds like it COULD be a clonic seizure, but I am fully awake for it all - is that at all possible? I am so confused and don't even know what doctor to go to if this EEG comes back normal... Edited to say: I just looked at some videos on Myoclonic seizures and that is more like what I am experiencing and it make sense, as you remain awake with those...
Thanks
Ramona
 
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It will not take longer for them to review the EEG results if they are abnormal or normal. It takes time to review the results. You're probably in a queue of many other people who had EEGs.

That said, it sounds like you're in need of medical help. If your episodes recur I would recommend going to the ER.
 
I called today to find out what the normal time frame is to get the results, since I am new with this doctor and, as it turns out, my expectations were out of line. It takes a week to a week and a half, so it will be next week before I hear anything. I will just keep hanging on and waiting. ;-)
 
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