Wish me luck!!!

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Sooo today I am going back to work after 1 month of learning my epilepsy had returned with a vengeance. I am really nervous!!! I still have 7-9 seizures or so a week but its much better than the 3-4 per day I was having. I'm still taking now 3,000 keppra and 2 mg Ativan per day so my moods and balance and everything is just so off. I'm praying for more awareness because I hate feeling the stigma. I'm not a broken person I have epilepsy. So I will update to let everyone know how it goes I'm not sure how the riding in a cab/carpool this is going to go either but I'm being as positive as I can be :)
 
Awesome! Great to hear that attitude :)

It's only natural to be nervous, but you sound like a fighter- I'm sure you'll cope..

Have you tried taking a B6 supplement? That really helped me a lot with the keppra moodiness and made work a lot, well 'smoother' for me lol

I know what it can be like at work, surrounded by ignorant tw*ts who don't know the score and are afraid to ask. Someone else suggested in a work thread recently, if there are a lot of people there that have no experience with it, you could maybe do a brief tutorial for the first-aiders there, at least, which might help with their reactions to the E.

I guess it really depends on the workplace when it comes down to it, but keep that positive vibe going..

..and good luck! :)
 
I was away from work for 6 weeks but have now been back for a month. You are definitely not a broken person. I was actually surprised myself. I did have a few things that I goofed up first off but once I focused on the procedures I had been taught and relied on a few refreshers from co-workers I am now doing harder things than when I left for my med change. Keep your positive attitude and don't put too much pressure on yourself and hopefully we will hear more back from you soon. Good luck! :wave:
 
Hi All,

Just giving an update work has been interesting I'm kinda starting to find a routine. I had two absence seizures at work but I can still do my job :D. I'm soooo exhausted when I get home and I've been feeling even more nauseous probably from the keppra and moving around so much more now. Thanks for all of the wishes it really helps to know your not alone in the process. Everyday is different and sometimes a struggle but I'm trying to make it work. The only thing is there's hardly no public trans so cabs are killing me Im probably going to move so its easier to get to work :hugs:
 
:rock: Really glad to hear for you that it is starting out ok. When i am able to get back to work I sure hope I get a similar chance. As for the driving or getting from point a to b, I have gone about things in a way where my drivers license has yet to taken away... fingers crossed it does not change - for me I know when a seizure is coming so if driving I pull over until all is ok again. Best of luck for you to have things continue coming in a positive direction!
 
Good Luck Mate!!!! Wish you the best , I know how it is returning back to work after a bad cases of the fits. I got so many stares when I walked in like I was going to start break dancing any moment or explode.

Do they let you take a good amount of breaks?

I agree with SlimBlue, B6 does help a lot I take B12 tablets as well for energy.

Sending you some Good Vibes!



Cheers! :cheers:
 
Glad things started well! Once the routine kicks in, you should find any nervousness receding. Don't worry too much about "stigma". Most people are unaware of the exact nature of epilepsy, but when they get some basic information they are able to be more understanding.
 
I'm glad to hear things are going well. I left for about 11 weeks on FMLA leave, practically pushed out the door by my supervisor with her saying how good it would be for me. My primary care doctor actually helped me a lot. But when I returned to work I got mixed reaction and decided to just come out with it whenever asked - I have epilepsy and was on leave to get the seizures under control with medication and alternative treatments.

Some people reacted well others looked at me like I was mentally challenged or had three heads. Now my supervisor is making my life miserable, she met with me less than two weeks after my return for my annual evaluation and tanked it and cited "personal problems" in it, she raised the expectations for my job performance to such an unreasonable point that others on campus have suggestd I seek either legal counsel or go to HR. She told me she has to "protect the college" - from what, my seizures? I have had seizures at work and had to be removed by ambulance, but that was before I, or anyone else, really knew what was going on. Now we know. No EMTs unless the seizure lasts 5 minutes or longer or I break a bone. ;)

There is discrimination, but I can't prove it yet, though I'm compiling evidence. It is not helping the stress situation. I also feel that exhaustion when I get home. She will point out every mistake and with the volume of work I'm doing I might type there instead of their sometimes. So I've started pointing out her mistakes as well, which hasn't helped. I want to wear a shirt that says, I have epilepsy, what's your excuse? But that sort of feeds into her hard on for me and isn't exactly politically correct.

I hope your coworkers and supervisors are supportive. It means the world to me when someone just says, hey how's it going? You doing ok? Because if I'd left on FMLA with uncontrolled blood pressure or hypoglycemia, this wouldn't be happening.

Some things I've done since returning from FMLA... I try to get some extra sleep, I take little breaks where I can at work just to get up and walk down the hallway, I've started listening to music when I don't need to concentrate too hard, if I have time I will go online and read some jokes - I especially like one liners because I can read like 10 of them in 2 minutes and get some good laughs which helps. If I have time at lunch, I try to take at least a 20 minute walk around the block and have lunch with a coworker to chat about non work things. I often read and check in on here - that's a big stress reliever. :) I just find the less stress the less nausea, though I have no experience with Keppra. Also, I get nausea with migraines and find both ginger capsules and mint tic tacs or gum will sometimes help. I also take B12 sublingual tablets along with vitamin D and fish oil and magnesium at night. And a multivitamin. All of that was approved by both my primary care doc and neuro. I was vitamin D and B12 deficient but not any more. I think the routine takes time and the energy gets a little better. I also often sit on a heating pad in the evenings and try to walk a few nights a week with my daughter.

Ah working with seizures.... It's an adventure! I'm wishing you the very best!
 
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