[Ketogenic] 1 month seizure free!!

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KarenB

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Jonathan is back! We have our sweet little boy with his smiles and hugs and energy back -- thank God!!

After all the horror (up to 9 tonic-clonic and tonics in a day) experienced in August, September, October, November, December, his seizures began to fade away, and now he's not had one in a month.

His Diazepam wean was completed in December, and in January he was weaned off Keppra.

In December, with the help of his GI doc and Pediatrician/Nutritionist, we tackled the Inflammatory Bowel Disease that seemed to be contributing to the seiuzres.

So, now he's on:
1) Ketogenic Diet 3.5:1 ratio
2) Zonegran 250 mg day
3) Nutrivene D (formula with multi-vitamins and supplements like selenim and carnitene, etc.)
4) Fish oil, magnesium, calcium, zinc, pancreatic enzymes
 
Karen,
That is great news about Jon :woot: , I hope things continue to go well.
 
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Hooray! Congratulations all around -- you've worked hard for this.
 
wonderful news Karen! Happy days for Jonathan, you ..and the family..Nice!

YOU are big inspiration.....BIG!
 
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