KarenB
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:banana:
Jonathan is back! We have our sweet little boy with his smiles and hugs and energy back -- thank God!!
After all the horror (up to 9 tonic-clonic and tonics in a day) experienced in August, September, October, November, December, his seizures began to fade away, and now he's not had one in a month.
His Diazepam wean was completed in December, and in January he was weaned off Keppra.
In December, with the help of his GI doc and Pediatrician/Nutritionist, we tackled the Inflammatory Bowel Disease that seemed to be contributing to the seiuzres.
So, now he's on:
1) Ketogenic Diet 3.5:1 ratio
2) Zonegran 250 mg day
3) Nutrivene D (formula with multi-vitamins and supplements like selenim and carnitene, etc.)
4) Fish oil, magnesium, calcium, zinc, pancreatic enzymes
Jonathan is back! We have our sweet little boy with his smiles and hugs and energy back -- thank God!!
After all the horror (up to 9 tonic-clonic and tonics in a day) experienced in August, September, October, November, December, his seizures began to fade away, and now he's not had one in a month.
His Diazepam wean was completed in December, and in January he was weaned off Keppra.
In December, with the help of his GI doc and Pediatrician/Nutritionist, we tackled the Inflammatory Bowel Disease that seemed to be contributing to the seiuzres.
So, now he's on:
1) Ketogenic Diet 3.5:1 ratio
2) Zonegran 250 mg day
3) Nutrivene D (formula with multi-vitamins and supplements like selenim and carnitene, etc.)
4) Fish oil, magnesium, calcium, zinc, pancreatic enzymes
