Hey folks
I been hanging around here for several months, kinda lurking in the back of the room - somehow that don't sound quite right, lets just say ive been doing a lot of reading and no posting. There that sounds a little better maybe.
Ive had seizures since '92 or '93, started out just complex partials, was completely controlled with various medications up until about 10 yrs ago - started having simple partials for a period of 2-3 days about every 4-5 wks.My little time of the month, my wife called it.I would have my aura, a very strong deja vu feeling rooted in depression and extreme confusion, then a feeling like a strong surge of electricity running thru my whole body, in all lasting about 2-4 min. and usually leaving me with that feeling of confusion and generally just a real bad case of the stupids.
I have been on 3750 mgs Keppra & 200 mg zonisamide for a while now and all of a sudden seizures started changing & coming more frequent. No aura for a while, then aura is back & no surge. Now I have my spell about every 8-10 days. My neurologist had me do a new EEG & MRI & sleep study- didnt find any rat nests or tumbleweeds up in there. Just a wide open expanse of prairie from ear to shining ear.
Now I am being ramped down on the zonisamide and up on Aptiom. Anybody have any experience with this stuff?
So now I start having these spells of my aura trying to start but lasting only 1-2 seconds and being nipped in the bud. Short enough to where the surge never happens yet just long enough to plant that seed of extreme confusion. The 2 days I had these I was having dozens of them per day some as many as 2-4 per minute. Those have tapered off to having only a few per day and the level of confusion not being near as bad.
I guess I have kinda rambled on a bit, but just wondering if anybody has experienced anything similar.
Nakamova, I am extremely interested in hearing more about your blips as you call them.
I really feel like Ive hit the mother lode in finding this site. So many good folks and so much great information. Its hard to process all this on a keppra-addled brain.
Thanks so much in advance
Ed