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Very well put, masterjen.I can say for me that it is not so much accepting seizures and the other issues as acknowledging their existence and respecting the limitations they often impose, so that I can live my life fully but safely and with as few seizures as possible (ie. avoidance/minimization of suspected triggers, etc.) I'm not sure I will ever accept it, because my interpretation of 'acceptance' is giving up the fight and giving up finding the answers for a cure to whatever this unknown condition is that I have.
I am not alone.
Thank you all for the replies.
Although my husband says my seizures are pretty bad I have no memory of them. I find it's the expectation of never knowing when one is going to occur that scares me the most. My first seizure was in Tesco's. I shut six self service tills down for an hour...on Easter Monday. I'm afraid to go out.. my hair needs cutting but I'm afraid. I went to the dentist last week and I was so scared my husband had to come in and hold my feet.
The summer holidays are here for two of my children and three weeks away for the other. I want to take them places in their holiday..but again I'm scared. My husband says he's going to buy a camper van so wherever we are I can lay in the back if I feel a seizure coming on. Genius!
Acceptance was and still is for me a continuous series of moments of acceptance.
"Acceptance doesn't mean resignation; it means understanding that something is what it is and that there's got to be a way through it."
- Michael J. Fox