I would be grateful for input as I get ready for an upcoming VEEG. I did one several years ago but at the time I was so passive and so ignorant that I really did not appreciate what was happening. In the interim I have had some bad times because of side effects and general confusion and frustration about how drugs were effecting me and the issue of do I or do I not have seizures. I have taken seriously various bizarre and/or robotic medical personnel while knowing that I am getting increasingly confused and PISSED; and because of time and age, am accumulating symptoms that nobody seems to grasp well enough to be of real help. I am determined to do right by myself this time around and I am hoping that the forum will help me. So here is the first question.
The paperwork from the hospital came today and it says not to discontinue any medication before entering the VEEG unit. I take 250mg Zonisamide. I understand it has a half life of 60 hrs. It sounds like the hospital intends to have me sitting around for over 2 days while that the Z goes out of my system. But I could have just as easily started the process at home! This MIGHT be reasonable on their part. What do you think? Also can you think of any conditions under which they would not discontinue the drugs for the duration of the VEEG? I have suspected that maybe the Z is one reason I have strange problems with eye sight and even hearing.At the same time I credit the Z for focusing me and it has been been better for me than the other anti-epilepsy drugs that have passed through me. I will appreciate whatever thoughts you have about this.
The paperwork from the hospital came today and it says not to discontinue any medication before entering the VEEG unit. I take 250mg Zonisamide. I understand it has a half life of 60 hrs. It sounds like the hospital intends to have me sitting around for over 2 days while that the Z goes out of my system. But I could have just as easily started the process at home! This MIGHT be reasonable on their part. What do you think? Also can you think of any conditions under which they would not discontinue the drugs for the duration of the VEEG? I have suspected that maybe the Z is one reason I have strange problems with eye sight and even hearing.At the same time I credit the Z for focusing me and it has been been better for me than the other anti-epilepsy drugs that have passed through me. I will appreciate whatever thoughts you have about this.