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Old 12-23-2010, 10:27 AM
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Smile Hi & starting e-mail Group


Hi,
I'm new but not to Epilepsy sadly (44 yr. struggle).
I'm on Vimpat, Topamax, Tegretol-xr (30yrs), and the VNS since Jan./2010.
I fell out of my walker at 9mos. onto our heating register and it caused a brain injury & burns.
As the B.I. healed it formed "scar tissue" which caused the Epilepsy I now have.
My complex/partials are triggered by fluorescent lights, hot showers, drastic weather changes, illness, & hormones. The Hormones cause "Drop attacks" though.
I always have an Aura - feeling of strong unexplainable fear (such as oncoming disaster I can't stop) or anxiety & visual enhancements.

I'd like to start an unofficial pen-pal group where we could send out (copy & paste) research & news on Epilepsy/Prescriptions that people are searching for.

It may be 2-8 e-mails a week to 2-8 every 2 weeks. Depending on my photosensitivity I may have problems but I promise you'll get the latest research, study, news out there.
I hope I can help somebody.
Rosie McKeever

Last edited by epileric; 12-23-2010 at 11:43 AM.
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Old 12-23-2010, 10:43 AM
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We typically post them here in the library section any new research we come across. Your always welcome to direct people here as well or you can use the search option to find specific questions.
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Old 12-23-2010, 11:28 AM
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Unhappy Oops, sure thing


Hi Rae,
Thanx for the heads up. That's where I'll go. I was unaware you were allowed to do that without getting the Forum in trouble.
I'll be checking out the Library alot. Hope I didn't step on toes.
TTYL,
Rosie
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Old 12-23-2010, 01:05 PM
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Hi Rosie, welcome to the forum.

CWE allows people to share info without disclosing private contact information to public scrutiny. You are welcome to post snippets/links to any research that you think might be of interest to the group in The Library.
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New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

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