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Hi,
I'm new but not to Epilepsy sadly (44 yr. struggle).
I'm on Vimpat, Topamax, Tegretol-xr (30yrs), and the VNS since Jan./2010.
I fell out of my walker at 9mos. onto our heating register and it caused a brain injury & burns.
As the B.I. healed it formed "scar tissue" which caused the Epilepsy I now have.
My complex/partials are triggered by fluorescent lights, hot showers, drastic weather changes, illness, & hormones. The Hormones cause "Drop attacks" though.
I always have an Aura - feeling of strong unexplainable fear (such as oncoming disaster I can't stop) or anxiety & visual enhancements.
I'd like to start an unofficial pen-pal group where we could send out (copy & paste) research & news on Epilepsy/Prescriptions that people are searching for.
It may be 2-8 e-mails a week to 2-8 every 2 weeks. Depending on my photosensitivity I may have problems but I promise you'll get the latest research, study, news out there.
I hope I can help somebody.
Rosie McKeever
I'm new but not to Epilepsy sadly (44 yr. struggle).
I'm on Vimpat, Topamax, Tegretol-xr (30yrs), and the VNS since Jan./2010.
I fell out of my walker at 9mos. onto our heating register and it caused a brain injury & burns.
As the B.I. healed it formed "scar tissue" which caused the Epilepsy I now have.
My complex/partials are triggered by fluorescent lights, hot showers, drastic weather changes, illness, & hormones. The Hormones cause "Drop attacks" though.
I always have an Aura - feeling of strong unexplainable fear (such as oncoming disaster I can't stop) or anxiety & visual enhancements.
I'd like to start an unofficial pen-pal group where we could send out (copy & paste) research & news on Epilepsy/Prescriptions that people are searching for.
It may be 2-8 e-mails a week to 2-8 every 2 weeks. Depending on my photosensitivity I may have problems but I promise you'll get the latest research, study, news out there.
I hope I can help somebody.
Rosie McKeever
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