I cannot exercise without having seizures. Is there anyone else out there?
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graceface
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Hey jayemzs,
Ive never had a seizure during exercise but i've come close, i've had a lot of pre-seizures during a workout and have learned that I have to pull back, I can't do anything intense which sucks, so i have to be really aware of how I'm feeling and workout at a slower pace. i don't do gyms anymore, more classes nd speak with the teacher about coordinating a routine that's less "intense" but consistent.
Ive never had a seizure during exercise but i've come close, i've had a lot of pre-seizures during a workout and have learned that I have to pull back, I can't do anything intense which sucks, so i have to be really aware of how I'm feeling and workout at a slower pace. i don't do gyms anymore, more classes nd speak with the teacher about coordinating a routine that's less "intense" but consistent.
DadofTwins
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A Big Welcome to You!
jayemzs,
Welcome to CWE and here's hoping your brain will do jst enough to find an answer on the EEG. You have found a site with caring and knowledgeable members.
Good luck on your journey and remember you are not alone.
Tom
jayemzs,
Welcome to CWE and here's hoping your brain will do jst enough to find an answer on the EEG. You have found a site with caring and knowledgeable members.
Good luck on your journey and remember you are not alone.
Tom
seizures4ever
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I have the same problem!
I cannot exercise the way most can. I immediately begin having sp and then cp szs. I even tried stationary bikes, etc. The best thing I've found to do are slow anaerobic activities and short walks. I understand your frustration. :e:
I cannot exercise the way most can. I immediately begin having sp and then cp szs. I even tried stationary bikes, etc. The best thing I've found to do are slow anaerobic activities and short walks. I understand your frustration. :e:
Hi to everyone who has been posting since my last update 
Well, my 24 hour EEG as I feared (in a way), once again came back with no significances. I paid a visit to the neurologist last Thursday for an update and he firstly took me off the 250mg of Lamotrigine that I'm taking every morning as he thinks this is the probable cause of my inability to sleep more than 4-6 hours per night.
He has however, kept me on the 2000mg per day (1000mg AM/PM) of Epilim Chrono and is now introducing 1000mg of Keppra per day, staggering the increase over 8 weeks.
To me it just seems like another stab in the dark really and to be honest, I have little to no confidence that this is the solution. Mainly due to the fact that I've been through many different AEDs over the last 15 years with no success.
There are times, like the way I've been for the last week, where I feel completely normal and don't have any sense that a seizure is round the corner. But then, I look back only two weeks and I couldn't leave the house alone, due to the lack of stability, the constant auras of deja vu and sensations that usually precede really bad seizures or blackouts. These have occurred in public before, including in large shops or malls and it is embarrassing. Despite what people might say to me about it being no big deal, I instinctively feel embarrassed and no one else will ever know how I feel at that time.
I guess the next step is to wait and see what happens with the new AEDs. In the back of my mind though, I'm just thinking, when will the next episode occur.
Has anyone here taken the combo of sodium valproate (epilim chrono) and Keppra together? Just interested to here some feedback.
Sorry for going on a bit in this post.
Thanks again to everyone
Well, my 24 hour EEG as I feared (in a way), once again came back with no significances. I paid a visit to the neurologist last Thursday for an update and he firstly took me off the 250mg of Lamotrigine that I'm taking every morning as he thinks this is the probable cause of my inability to sleep more than 4-6 hours per night.
He has however, kept me on the 2000mg per day (1000mg AM/PM) of Epilim Chrono and is now introducing 1000mg of Keppra per day, staggering the increase over 8 weeks.
To me it just seems like another stab in the dark really and to be honest, I have little to no confidence that this is the solution. Mainly due to the fact that I've been through many different AEDs over the last 15 years with no success.
There are times, like the way I've been for the last week, where I feel completely normal and don't have any sense that a seizure is round the corner. But then, I look back only two weeks and I couldn't leave the house alone, due to the lack of stability, the constant auras of deja vu and sensations that usually precede really bad seizures or blackouts. These have occurred in public before, including in large shops or malls and it is embarrassing. Despite what people might say to me about it being no big deal, I instinctively feel embarrassed and no one else will ever know how I feel at that time.
I guess the next step is to wait and see what happens with the new AEDs. In the back of my mind though, I'm just thinking, when will the next episode occur.
Has anyone here taken the combo of sodium valproate (epilim chrono) and Keppra together? Just interested to here some feedback.
Sorry for going on a bit in this post.
Thanks again to everyone
Just a thought about possibly why you can be exercising gently on a training run and have issues, but push it really hard for a race and be okay: I'm thinking the adrenaline and crowd and excitement and anticipation and build up in an actual race situation maybe help the body get the blood sugar/insulin balance to where it needs to be? Can psychological factors or an adrenaline route or even pheremones from the other psyched up runners, help your pancreas perform properly? Would be nice if it could!
Hi Bathtub
Unfortunately, I can't exercise intensely or gently. Even quick walking can evoke sensations at times.
I would really like a full medical of my whole body to give me piece of mind that my heart etc is in perfect working order. My mother has an irregular heartbeat and has been on med's for this for 30 years.
Unfortunately, I can't exercise intensely or gently. Even quick walking can evoke sensations at times.
I would really like a full medical of my whole body to give me piece of mind that my heart etc is in perfect working order. My mother has an irregular heartbeat and has been on med's for this for 30 years.
LuminaryLucy
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Hi Jayemzs
I was on an Epilim and Keppra combo for a short time while I was crossing over between the two drugs - weaning off Epilim and onto the Keppra. I found it increased my simple partials but once theraputic for Keppra was OK again. Both drugs were not great for me in terms of side effects. I am now on only Lamictal.
I don't think exercise has any impact on my seizures. But then again I don't do a lot of it. Partly that is fear and lack of confidence. However I find that sometimes I feel a huge headache come on as if my brain is being starved of oxygen during or straight after exercise. I walk and cycle my bike and swim in summer, but I can't push myself like I could before. I do wonder if I got my fitness levels up if this would change things.
It took 6 months before someone thought I may have epilepsy. One of the many specialists I saw were cardiologists who ran several long term heart trace monitors and I had chest xrays and an echo cardiogram, so I at least know it is not my heart. Heart problems are in my family.
Ask your doctor to get some heart tests run or to see a cardiologist. Peace of mind can be everything.
Best wishes
I was on an Epilim and Keppra combo for a short time while I was crossing over between the two drugs - weaning off Epilim and onto the Keppra. I found it increased my simple partials but once theraputic for Keppra was OK again. Both drugs were not great for me in terms of side effects. I am now on only Lamictal.
I don't think exercise has any impact on my seizures. But then again I don't do a lot of it. Partly that is fear and lack of confidence. However I find that sometimes I feel a huge headache come on as if my brain is being starved of oxygen during or straight after exercise. I walk and cycle my bike and swim in summer, but I can't push myself like I could before. I do wonder if I got my fitness levels up if this would change things.
It took 6 months before someone thought I may have epilepsy. One of the many specialists I saw were cardiologists who ran several long term heart trace monitors and I had chest xrays and an echo cardiogram, so I at least know it is not my heart. Heart problems are in my family.
Ask your doctor to get some heart tests run or to see a cardiologist. Peace of mind can be everything.
Best wishes