Coping With Epilepsy Medikidz Comic Book Explains Epilepsy
Sponsored Advertisement

Go Back   Epilepsy Forum > Our House > The Foyer

LinkBack Thread Tools
Old 11-19-2012, 06:28 PM
New Here
Join Date: Nov 2012
Posts: 2
Thanks: 1
Thanked 0 Times in 0 Posts

Newly struggling

I've had juvenile myoclonic epliepsy since I was 12 years old. It took 4 years to be diagnosed before I was reluctantly started on medication. I have been coping well since by putting it to the back of my mind, almost pretending that it isn;t there/joking about it but recently I've been having panic attacks and it's siddenly dawned on me that this is something that isn't going to fade away and now I'm resenting it every time I take my medication. I don't want to talk to my friends/family about this even though they are all great. I don't want to burden them with the worry. I just need to know that someone has had the same sudden, random crisis that will hopefully just pass.
Reply With Quote
Old 11-19-2012, 06:56 PM
Joined the Party
Join Date: Oct 2011
Location: New Zealand
Posts: 49
Thanks: 2
Thanked 13 Times in 12 Posts
I haven't been diagnosed with anything and have only had a single seizure to date, but I have struggled with the anxiety and panic attacks of worrying about recurrences for years, and in some ways it affected me far more than the seizure itself.

Panic attacks and anxiety come and go and I had good days and bad, but on the whole you learn to live with it and then with the realization you can live with it, it fades. It won't be with you forever, but you are very far from alone in your experiences.

Your profile says you had a seizure after years free. How long had it been? Is the anxiety a result of the recent seizure after many years free?

juvenile myoclonic epilepsy is usually easily and well controlled as am sure you know so try not to stress too much. You can't do much about the epilepsy but you can do something about the panic attacks etc. And do talk to people, they will want to help and trying not to make them worry adds more pressure to you - they will worry more if you don't talk to them I imagine.
Reply With Quote
The Following User Says Thank You to Cardones For This Useful Post:
stephlr (11-19-2012)
Old 11-19-2012, 07:30 PM
dmnckvrs's Avatar
Joined the Party
Join Date: Nov 2012
Location: New York, New York
Posts: 60
Thanks: 32
Thanked 15 Times in 9 Posts
Hello Steph, while I'm not in the same predicament as you, I can certainly relate to the stress of not being able to change certain things/being in control of your body. That in itself, regardless of what it is, is not a comfortable feeling, and you're certainly not alone.

I know you said you don't want to burden family/friends, but I would really suggest talking to at least a friend about it. Don't take this the wrong way, but you would be surprised with how pre-occupied people are with themselves/their own problems, that they end up not worrying so much about you. This goes back to why you definitely shouldn't feel alone..everyone struggles with something (and if they aren't, they should feel extremely blessed). This doesn't mean they still can't be understanding/supportive or that they don't care about you.

Wish you all the best.
Reply With Quote
Old 11-19-2012, 09:12 PM
Super Moderator / Thank You Queen
Join Date: Jun 2005
Location: Massachusetts
Posts: 16,454
Thanks: 947
Thanked 7,323 Times in 5,406 Posts
Quote :
I don't want to talk to my friends/family about this even though they are all great. I don't want to burden them with the worry.
It can help to talk to someone -- if not a friend or family member, then a therapist or advisor might be a good fit. Getting it off your chest is a good first step to putting the worry behind you.
Reply With Quote

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On

Similar Threads
Thread Thread Starter Forum Replies Last Post
Struggling Student hotwire The Kitchen 24 05-06-2012 07:41 PM
New member - struggling with med changes RachelGreene The Foyer 15 09-05-2011 08:11 PM
Struggling With New Diagnosis ekalina The Foyer 5 07-09-2011 02:57 PM
Taking college algebra and struggling sleepingsam The Foyer 4 03-30-2009 01:29 AM

All times are GMT -5. The time now is 08:51 AM.

Powered by vBulletin® - Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.