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Dear all,
My son has had three small seizures today and it has left my wife and I in a bit of a panic.
Luke started having seizures three years ago. He almost always has them while he is sleeping and he used to just go still. We noticed that he wasn't breathing and thought it was some form of sleep apnea. We even ended up in the emergency room and then spent three days in a hospital in Canada without anyone mentioning epilepsy. It wasn't until we saw a neurologist in Miami that we finally had the correct diagnose.
Luke is taking trileptal and after it his dose was increased in early August, he has been seizure free until today. Around 5:00 this morning he had his first seizure. He was sleeping with us and started shaking. It lasted for around a minute and he didn’t really wake up. We noticed that he had a slight fever, but let him go back to sleep. He woke up again around 6:00 and we gave him some liquid Tylenol to help him sleep. Around 7:00 he had a second seizure similar to the first. We kept him home from school and he seemed to be tired and a bit out of it. At 3:00 today he had this third seizure, similar to the first one, but lasting two minutes instead of one.
We have diastat and are ready to give it to him if they reoccur.
Quite frankly, part of our problem is that we live overseas (Dominican Republic) and our neurologist is very hard to reach. When things go wrong, like they did today, we get very scared.
One of our worries is that it really seems like Luke is not breathing during his attacks. Sometimes he turns quite purple. Is this a normal part of a seizure? My wife used to give him mouth-to-mouth when his seizures first started, but we stopped when we realized that he would come out on his own.
Are we doing the right thing?
Worried Parents in Santo Domingo
My son has had three small seizures today and it has left my wife and I in a bit of a panic.
Luke started having seizures three years ago. He almost always has them while he is sleeping and he used to just go still. We noticed that he wasn't breathing and thought it was some form of sleep apnea. We even ended up in the emergency room and then spent three days in a hospital in Canada without anyone mentioning epilepsy. It wasn't until we saw a neurologist in Miami that we finally had the correct diagnose.
Luke is taking trileptal and after it his dose was increased in early August, he has been seizure free until today. Around 5:00 this morning he had his first seizure. He was sleeping with us and started shaking. It lasted for around a minute and he didn’t really wake up. We noticed that he had a slight fever, but let him go back to sleep. He woke up again around 6:00 and we gave him some liquid Tylenol to help him sleep. Around 7:00 he had a second seizure similar to the first. We kept him home from school and he seemed to be tired and a bit out of it. At 3:00 today he had this third seizure, similar to the first one, but lasting two minutes instead of one.
We have diastat and are ready to give it to him if they reoccur.
Quite frankly, part of our problem is that we live overseas (Dominican Republic) and our neurologist is very hard to reach. When things go wrong, like they did today, we get very scared.
One of our worries is that it really seems like Luke is not breathing during his attacks. Sometimes he turns quite purple. Is this a normal part of a seizure? My wife used to give him mouth-to-mouth when his seizures first started, but we stopped when we realized that he would come out on his own.
Are we doing the right thing?
Worried Parents in Santo Domingo